spleen
- This topic has 17 replies, 7 voices, and was last updated 14 years, 1 month ago by
.
-
Posts
-
Hi this is Jacque, Tom and Judy’s oldest daughter. I was doing so good with updates, but things have really been going pretty good with my mom that I just haven’t felt the need to. ;-( Well, I say that as I think about the horrible amounts of pain that she’s been in. That’s sooooo frustrating, as I’m sure my dad can atest to. We are ALL very hopeful about this new raidiation treatment. It is the BEST news that we’ve heard in a long time, however, it upsets me that if this is a new treatment why were we not called? This is the same center that my mom visits every other week for her chemo treatments. When a new treatment comes available do they not look at all the files/records/cases and see if there are any that would benefit? I know that we are suppose to be our own advocates, but at the same time we put all of our trust in THEM. UGH!
So yes any information on any new treatments or on this Trilogy Radiation please please please share with either my dad or myself.Tommy….You are doing all the right things by looking in to options for Judy’s treatments. We need to have hope, because without hope we may stay stifled and don
Marion, thanks for being here. Judy did radiation last summer,09, and has done 19 rounds of chemotherapy. I am not sure what type of radiation treatment she had. The treatment I heard about on the radio sounded like something new and now available at the treatment center. I called and asked about it. Didn’t get any answers but did get an appointment with the Radiation Dr. she had last summer. I feel like I am wishing on stars and grasping at slivers of hope. This seems to be the best news we have heard in the last eighteen months. Scared of getting our hopes up. It just sounds so much better than what we have heard. We will know more about it next Wednesday. Thanks again for being here. This has been the most unexpected and emotional turn of events in our life. Thank You so much. Tommy
Tommy…..have you spoken with a radiation oncologist regarding Intensity Modulated Radiation Therapy (IMRT) or, one of the other available radiation therapies.
Best wishes
MarionHey everybody, Tommy here, Judy is my wife, not my mother. One of our girls was using this site as well as me. I haven’t been on here for some time. I am pretty sure our oldest daughter, Jacque, is the responsible party for the updates. Judy did fine with the spleen removal. We have a tough time keeping her pain under control. I heard of a radiation therapy on the radio today that targets hard to reach and inoperable tumors. I think it is called trilogy. If anyone has heard of this kind of treatment please let us know. Thank you for all the support you have given our family. It is nice to talk to people without really having to talk to people. Thank You.
Today the Dr. said that there is the option of removing moms spleen…… but until they can do the CT scan on Tuesday, he’s not willing to make any decisions. So this is me venting: 1. why aren’t they doing the scan NOW? The dr. said that her situation doesn’t warrant an emergency situation, so they can’t call in the CT team. Um, this is an emergency!!!!! We need and deserve to know what is going on. 2. he said that if he removed the spleen due to her low platelets there is the risk of bleeding. Now he says we will just give her platelets. WHAT? Give her platelets NOW so that she can do chemo! ERRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR We are just so frustrated! So again, we sit and wait. Hopefully on Tuesday we will get some GOOD news. My mom has cried so much today. She’s so worried that the cancer is spreading. Which, it could be…. it probably is. But how do you say that to her? This sucks! Cancer SUCKS!!!!!!!!
However, at least I have this site!
All I’ve done the past 3 days is read, read, read, and read on this site. Some good stories, and some sad stories. But, all of it was beneficial!Hi Tommy,
I know what you mean about feeling lost after doing a load of research on all of this. I felt the same after my dad was dignosed with his CC. I did a load of research on the net etc and felt the same. Indeed, this is how I ended up here and I am so glad that I found this place as everyone here was a great help to me in so many ways, and I am sure that you will find the same amount of support and help from all of us also.
Like you I also hate the unknown, I guess that we all do and want to know what is going on etc. And yes, it is hard sometimes to be patient and have to wait to see what the doctors come up with. But that is all something that we have all had to do at some point with regard to treatment, scans, results and appointments. All I would say to you is please just try and be patient, let the doctors see what is happening and take it from there. In the meantime, I would say to you to come back here as much as you want as we know what you are going through.
My best wishes to you and your mum,
Gavin
Tommy…..I believe you would want the physicians to rule out the blood clot first. There is a good chance for this problem to be solved. Tommy, this disease varies from person to person. Information is good however, it can also have negative effects especially, when we are tying to stay in control of the situation and would like to prepare for each possible event. That simply is not possible. I would make sure that the appointment is made for your Mom and wait for the results. The next step will evolve. I so much relate to your feelings of anxiety because; I don’t like to deal with ambiguity either. But, you may worry unnecessarily about something which may never occur.
Hang in there and don’t forget to take a breather. You will not be lacking any support from this site. We are here for you.
I am crossing my fingers for good news coming your way,
MarionTommy so sorry you are going through this awful time. I may have 1 suggestion. Possibly you could gather up her information and test results and send them by FAX to Mayo Clinic in Rochester MN or to MD Anderson in Houston and see if you can get some additional help. I know it all sounds impossible when different DX are shooting up but someone will eventually nail it on the head. Please keep us posted.
Thank you all so much. I’ve been doing so much research that now I just feel lost. There is just so many things that “it” could be. I do trust her dr., but sometimes wonder if they just don’t miss things.
Our question now is what if it’s not a blood clot, but that the cancer has spread to ther spleen? That can’t be good…. but, is it horrible???
UGH….. I am so not a patient person! And I HATE the unknown!
Hi Tommy,
I am glad to hear that your mums medication is now working and that her pain is now under control. Hopefully now the docs will be able to have a look at her spleen and see what is going on. Please keep us up to date with how your mum is doing.
Best wishes to you and your mum,
Gavin
Tommy….this explains the formation of blood clots due to cancer. Ironically, Dr. Trousseau developed clots due to gastro cancer.
http://en.wikipedia.org/wiki/Trousseau_sign_of_malignancy
Best wishes,
Marionthank you so much for that positive information.
always good to hear that something “new” isn’t horrible. this disease is just so unknown, it’s scary.Hi there, we found out that my mom had CC because of the blood clot in her spleen. It caused her alot of pain, and that’s what prompted her to go the ER. Further testing revealed she had CC and the blood clot. It is very common to form blood clots when you have cancer. They just put her on blood thinners to help break it up, and then she had to stay on them to prevent future blood clots.
This is Jacque, Tommy and Judy’s daughter.
My mom’s cancer is located in her bile duct. She was diagnosed April 2009. Because of where the tumor was located in her bile duct they said it was inoperable.
I’ve been doing a TON of research and I now wonder if what she is experiencing right now is chronic pancreatits (sp). Has anyone else had any problems with their pancreas?
- The forum ‘General Discussion’ is closed to new topics and replies.