April 3, 2012 at 6:33 am #59639marionsModerator
Tiff….Xeloda is in pill form wheras 5F-U is given intravenously. Why some physicians prefer one over the other I can’t answer however; it had been mentioned that Xeloda appears to have more side effects than 5-FU.
Considering the amount of people treated with Xeloda that we know of – on this site – I can’t say that it is true for us.
Good question to ask the oncologist thought.
Hugs are coming your way,
MarionApril 3, 2012 at 3:45 am #59638jtoroMember
I was on xeloda for 19 months. Three pills in morning and three at night. The only trouble I had was feet peeling and numbness, but nothing I couldn’t handle.
It got to be a little too much after a year, so he cut me down to 4 days instead of 7. I never got the mouth sores or any other side effects. I was on this with Gemzar for 19 months, then had to switch to 5fu/oxilaplatin which I’m on now.
Best wishes to you on this new treatment. My prayers are with you.
JtoroApril 3, 2012 at 3:16 am #59637jathy1125Spectator
Tiffany-I had gemcidabene, 5FU and XELODA. I had the 5FU pump 24/7 while doing 5 days a week, for 6 weeks of radiation. My main side effect was extreme tired!!
Lots of prayers-CathyApril 3, 2012 at 2:46 am #59636tiff1496Member
Thanks yall. Kris– day by day please! LOL you can tell me about it on fb. I hope the insurance doesn’t give me any problems. The most I have to pay for any drug is $40. When they didn’t want to pay for my Traceva, my local cancer center gave it to me for free! They have people donate unused meds, it is $5k a month.
I wonder why some doctors use Xeloda and some do the 5FU?April 3, 2012 at 2:08 am #59635jathy1125Spectator
Kris/Tiffany I took XELODA for 5 months while I waited for first transplant. I took 8 pills in the morning and 8 pills in the evening and I happy to tell you i had no side effects!! The nurse fromXELODA called me weekly and checked on me. My biggest problem with XELODA was the cost, since I have private insurance I pay first and get reimbursed by BCBS, which has about a 45 day pay schedule. I had to pay $4,000 a month for my dosage and the check never came before time for the next refill!! It is amazing to think how you just put one foot in front of the other and keep going!! My one silver lining was being that sick I met all my deductables by mid january and was at the 100% reimbursement rate! LOL!!!
Lots of prayers for both of you-CathyApril 3, 2012 at 1:14 am #59634kris00jSpectator
I’ll be a day or two ahead of you. I don’t even want to tell you what my copay is for the drug! If it wasn’t so much I would have laughed! Well, you can’t get blood out of a stone. $350 for 2 cycles and we’re shooting for 4 cycles. Yours will be less, because I’m sure you aren’t 6’1″ with a corresponding weight.
I’m sure you’ll do fine with the Xeloda. I’m trying to think positive for me, too, with the side effects being minimal or non-existent. You’ve weathered so much. Do you want me to give you a day by day or do you want to find out for yourself whether you get the side effects? I can tell you what they said MIGHT happen, but I’m sure your onc will go over all that with you.April 3, 2012 at 12:52 am #59633lainySpectator
Hi Tiff, don’t know any stories just wanted to let you know I am thinking of you and wishing you the best!April 3, 2012 at 12:48 am #6608tiff1496Member
So my local onc called today, her and Dr. Javle talked and I will be starting Xeloda ASAP. They have to get it approved via the business office first. Isn’t that CRAZY….a life saving drug needing to be approved??
Anyways, I will still do the Gemzar, but after having 2 reactions to cisplatin they both think its best that I come off it.
I would love to her some good stories about Xeloda!
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