July 21, 2015 at 9:50 am #86604
His procedure has been delayed until tomorrow as they want to have another scan before they do it.
My partner (Rob) spoke to his Mum this morning and she told us that they have said that his Dad (Brian) has lost weight, which isn’t so good. He’s seen the nutritionist who has made some recommendations. Rob’s Mum said that she thought that maybe some of his muscle had wasted as he hasn’t been doing so much exercise. I’m a little surprised about this as they normally go to exercise classes every week and after Rob went over in Feb, his Dad said that he’d been out scything the grass, so I’m wondering if they haven’t been telling us everything. IN Feb Rob also said his Dad seemed as fit as a fiddle.
I’m guessing that Rob may have to make another trip at some point to see how he is.
Ali xJuly 20, 2015 at 10:13 pm #86603marionsModerator
Ali….good luck with the procedure. Although commonly done, it is not the most comfortable procedure. Please make sure that your father in-law hears and understands clearly what it entails.
MarionJuly 20, 2015 at 6:07 pm #86602
Great to see you again and thanks for the update on your partners dad. Bar the need for the stent change, it sounds like things have been going really well for him. The clogging of stents is very common and how long each one lasts depends on whether they are metal or plastic. Hopefully the changing of this one will be a breeze and he can go back to doing really well once again!
Hope it all goes well and please let us know how it goes.
My best to you,
GavinJuly 20, 2015 at 8:50 am #86601
Thanks Lainy. He’s doing remarkably well and there was a time back in January when we thought he might not be here by now. Good to know that sorting out the stents should be straight forward. He has quite a blunt oncologist, but that seems to suit him quite well. I’m not sure that everything has quite been explained to him eg. he didn’t really know why he was having regular blood tests, but he’s also quite deaf, so might not have heard everything he’s been told.
My partner spent a week with his parents in February and sorted out some things in the house for them. He also arranged for an assessment for extra help in the house, but his Father refused that after he’s left!
His procedure is today, so hopefully he’ll be out around the end of the week I think…July 19, 2015 at 7:21 pm #86600
What a special man he must be when at 86 years young he can handle this like magic! OMGosh! I want to be like him when I grow up!!
Changing the stent is easier than changing the guard! My wish is for him to continue to be this wonderful Miracle in peace and comfort. Thank you for the update and I am sitting here with the silliest smile that I can’t seem to stop. I LOVE his story!!!! Will look forward to many more chapters.July 19, 2015 at 6:25 pm #86599
It looks like it’s been nearly 6 months since I was one here.
So my partner’s Dad had a scan in May which showed virtually no change in the tumour (and he’d had no more symptoms) which has all been good news. His next oncology appointment was for early August. However he’s just been admitted to hospital as it looks like his stents are blocked. Fortunately he noticed changes in his urine colour and bowel movements, so saw his doctor last Monday and his oncologist on Friday. The good thing is that he hadn’t really become jaundiced too much and was able to drive himself the 180 miles to the hospital in Perth. He will have his procedure tomorrow and we’re hoping that it will be as simple as last time.
We’d been able to forget about this for a while, so it’s a reminder that it is real.February 6, 2015 at 7:37 pm #86598darlaSpectator
Sounds like things are heading in the right direction and you will be getting more information and input into his situation. Let us know how things are going as you hear more.
DarlaFebruary 6, 2015 at 7:12 pm #86597
This is a good plan Alison and thanks for letting us know about it. Hoping that you all get some good news and please let us know what happens with it. 2nd opinions or more are so important and I hope that you will get some good names and info that is specific to Australia.
My best wishes to you,
GavinFebruary 6, 2015 at 4:57 pm #86596
Alison, your course of actions is good news. When they are able to sit down all together and discuss the situation and hopefully all be on the same page everyone will feel better. It IS his Dad’s decision to make and it is so important for him to feel his family is behind him 100%. Thanks for the update and we will hope for the best outcome!February 6, 2015 at 11:49 am #86595
Well we have some good news, I think. He saw the oncologist today who said that he didn’t want to offer chemo without being more sure about the tumour. So they will be getting a look at it again in May to see if it has changed.
We’re happier about this approach and I think they are as well. My partner is still flying out tonight and this might give them a less pressurised time to talk about things. We’re also getting recommendations of names for a 2nd opinion etc. via our London based Aussie cancer nurse friend, so I may be able to offer those names out for others in WA.
Thanks everyone again and hello DarlaFebruary 5, 2015 at 7:27 pm #86594darlaSpectator
Glad you have found us, but sorry you have a need to. Yes, we are global and several people on here are in Australia. You will get all the help and support we can give. Please update us as you know more.
DarlaFebruary 5, 2015 at 7:12 pm #86593
A global family indeed, as are we all here!February 5, 2015 at 3:31 pm #86592
Just as good Alison. You are truly a global family!February 5, 2015 at 3:06 pm #86591
Thanks Lainy. My parner’s actually Australian, but lived in Italy for a few years.February 5, 2015 at 3:01 pm #86590
Alison, we are miles apart and probably years apart in age but we are speaking the same language. I have always told others that the more you know about the end the less scary it is. I have no fear at all what so ever! I love your spirit and attitude and I think things will calm down a little once your partner goes to see the situation for himself. It is always the unknown that is so frightening. So he is Italian, nice!
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