Surgery? No surgery?
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Hi Gavin,
Our Oncologist and also Professor Lodge’s team in Leeds do not feel that the cancer has spread outside the liver. I believe that they have seen the tumour on the adrenal gland but believe it’s benign, due to the grading of the cells or something (unfortunately I wasn’t at the appointment when this was discussed, so I only have the info. second hand from my parents).
We then got a second opinion on mum’s case from the Aintree team in Liverpool, who believe that the tumour on the adrenal gland is cancerous. It’s a bit confusing as both Prof. Lodge and the Liverpool team have expertise in this cancer but currently disagree.
Our current plan is to continue with chemo and see what happens to the adrenal tumour. Our Oncologist feels that we will know if it’s cancerous from the results of my mum’s next scan (i.e, if it shrinks!).
Dealing with the uncertainty and differing opinions is a real challenge, so we’re just taking one tiny step at a time, and keeping going with my mum’s chemo. Her first post-chemo scan is in a few weeks and we wait with baited breath.
Jules
Jules,
Sorry to hear this latest news about your mum. I too agree with the others about seeking a third opinion on everything. Can I ask where you got the second opinion from? And yes, soldiering on sounds like the ideal plan to me!
Hugs,
Gavin
Hi Jules,
Sorry I’m coming to the conversation late as I have been away. I’m with the others – get another opinion. There’s to much to lose and everything to gain by getting one.
Hi,
If you can get a PET/CT scan, then it will tell you whether there is any tumor or cancer ACTIVITY in the adrenal gland area.God bless.
Thank you both! A third opinion it will be!! Just when you think that you’re getting a little more comfortable with the situation, the rug is pulled from beneath you and you’re all at sea again. We will soldier on! x
Jules…..So sorry to hear the latest news. Cholangiocarcinoma Adrenal gland involvement is possible but we have few postings. I would suggest additional, expert opinions.
The below postings may be of help to you:
http://www.cholangiocarcinoma.org/punbb/search.php?search_id=2047036606Your Mom has raised a fine daughter, a direct reflection of herself.
Hugs to both of you,
MarionJules, when in doubt at all always get yet another opinion. Hoping for the best! That 3rd opinion will be the tie breaker!
Hello… the rollercoaster continues. Mum got some bad news today that the cancer seems to have spread to her adrenal glands. She has ICC (one large tumour and lots of little satellites in the liver).
She had an initial scan and both her Oncologist and surgeon felt that the cancer had not spread outside the liver, so the plan was three rounds of gem/Cis and then consider a resection. However, her initial scan was then sent for a second opinion to a more expert CC team, who said that there is evidence of spread to her adrenals – therefore no surgery!
It’s so hard to know who to believe! Mum’s Oncologist today was looking at the scan and still feels that there is no spread. What to do? What to think?
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