Discussion Board Forums Survivor Stories Survived very long

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    Thank you all my dear CC friends and advocates for your condolences.  We know that so much good has been many accomplishments have been completed over  the past 6 years, but there is still so much more to do,  Although Facebook is now much more popular, this discussion board was so critical in giving me information to be an advocate for my mother.Being able to reach out to Marion, Lainey, Melinda, Matt, Mary, and Gavin ( and countless others) gave us strength. I was also able to search out those who survived w/o surgery and see how they achieved it.  I’m sorry that when Dad died close to 3 years back, I had to fall back om communicating and focus on trying to support Mom and I wasn’t emotionally strong enough to follow the board.

    My love and hugs are with all.







    I am so sorry for your loss.  Your mom’s story inspired many (including me and Kathy) to have hope beyond the initial grave diagnosis given to most.  You have our deepest condolences



    I am so very sorry indeed to hear of the passing of your mum. Please accept my sincerest condolences. I lost my mum too just over a year ago so know how you are feeling right now. I wish there was something that I could say that would help ease the pain that you feel right now but know there are no words.

    Your mum did fight a long hard fight and both you and your mum together did not give up and kept looking for answers. I know how proud of you she would be in your quest to help her through all of this and to deal with it all.

    My thoughts are with you and your family right now.





    I was saddened to hear the news of your mom’s passing.  Please accept my condolences for the loss of your beloved mom.  Her story brought both hope and encouragement to our board members.  My prayers are with you and your family.

    For readers who have not followed Catherine’s mom’s story, although she was not able to have surgery, she survived six-plus years after diagnosis, and did so with an exuberance for life, travel and her family.  I know she will be deeply missed.

    Take care, regards, Mary




    I’m so sorry to hear that your Mom has passed. You have my deepest condolences.

    i became aware of your Mom’s CC journey in 2014, when I joined this group to better understand CC and be able to support my husband, who was diagnosed with Hilar CC in 2014.  Your mom fought through so much, and I’m sure all your love and support meant a great deal to her.

    I wish you peace and wonderful memories of your mom.



    Hi. Mom died today, but was dx in Oct 2013 and given one year to live.  She far surpassed the DX, and I attribute it to my learning so much from this board which helped my be a better advocate for her. There is much to do, but so much more hope than was offered on 2013.  Love and hugs to all, middlesister

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