The Cholangiocarcinoma website – updating, changing, correcting…….

Discussion Board › Forums › Announcements › The Cholangiocarcinoma website – updating, changing, correcting…….

Viewing 11 posts - 1 through 11 (of 11 total)
  • Author
    Posts
  • February 20, 2015 at 10:44 am #86392
    gavin
    Moderator

    Thank you Marion and Catherine!

    Hugs to you both,

    Gavin

    February 20, 2015 at 2:00 am #86391
    middlesister1
    Moderator

    Ditto Marion’s sentiments. You are amazing Gavin. Thank you!

    February 20, 2015 at 1:29 am #86390
    marions
    Moderator

    Same to you, dear Gavin, for your selfless and unpaid work you do for all.
    Hugs,
    Marion

    February 19, 2015 at 9:34 pm #86389
    gavin
    Moderator

    My utmost thanks to Heidi, Karen and all of the other volunteers as well. The work they all do is invaluable and what a great team we have here!

    Hugs and thanks to everyone,

    Gavin

    February 19, 2015 at 6:52 pm #86388
    marions
    Moderator

    There are so many unique issues to address with the care of patients. In order to inform nurses of the varying needs required to assure adequate patient care, Heidi and Karen try to attend as many conferences as possible. What would we do without our incredible volunteers?
    Hugs,
    Maron

    February 19, 2015 at 10:32 am #86387
    gavin
    Moderator

    Thanks for that Marion, very good. Looking forward to reading the literature once it is published and this will be of great help to so many patients and their families as well.

    Hugs,

    Gavin

    February 19, 2015 at 7:31 am #86386
    iowagirl
    Member

    Marion…so glad to hear about the nursing advisory board. This is an excellent addition to the CC Foundation.

    February 19, 2015 at 6:18 am #86385
    marions
    Moderator

    In addition to our medical advisory board, a nursing advisory board has been established. The purpose of this board is to develop and update standard nursing care for cholangiocarcinoma patients worldwide with the hope that all patients – wherever they reside – receive appropriate care.
    Take a look:
    http://cholangiocarcinoma.org/the-cholangiocarcinoma-foundation/advisory-boards/nursing-advisory-board/

    January 28, 2015 at 6:36 pm #86383
    gavin
    Moderator

    I love the website, looks very professional and easy to navigate as well! Thanks to all involved and big thanks to Rick!

    January 28, 2015 at 3:49 am #86384
    lainy
    Spectator

    Marion, excellent as usual. Not sure how to improve on perfection. A BIG thank you for all those who worked on this! I hope to be like all of you when I grow up!

    January 28, 2015 at 3:33 am #10899
    marions
    Moderator

    Have you taken a look at our currently updated website? What do you think? What would you like to see differently, what should be added? Your voice counts and we always are ready to learn from you.

    http://cholangiocarcinoma.org/

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