The journey starts

Lalupes, it looks like your sister and I are on the same schedule. My next cycle starts tomorrow. I was a little concerned when I met with my Onc this morning. The results of my CBC last Thursday showed that my platelets were low (80), which meant they would either delay or change my treatment tomorrow. So they stuck me again and did another CBC. From Thursday to today, the platelets increased to 400. All the other checks were also back to normal.
I did find out that I am a good candidate for the Sir-Spheres. So unless things change, I will finish this cycle. Then wait 2 weeks to get the chemo out of my body and get on with the Sir-Spheres. They said the Gemzar hs to be out of the body before the SIRT. They are also checking with the Insurance for coverage.

My weight seems to have leveled off. What I have been doing is eating when ever I think about it. Not very much at a time, just constant. I try to drink a Boost in the morning and another in the afternoon. I’m on colesterol medicine, but for now I don’t worry about stuff high in colesterol. I love vanilla milkshakes. One thing I do not care much is for foods high in sodium.
I did notice yesterday that my hair is starting to come out. Not bad yet. I’m going to hold off getting a buzz and see if it just thins or comes out in patches.

It’s been a while since my last update. This week was my off week of Gem/Cis. Feels good not to be tired all the time. Was able to take some walks and get a little exercise. I did go see a Interventional Radiologist to talk about a Sir-Sphere. It’s not scheulded yet, but we are talking about January. They want to try and shrink it as soon as they can so it can be removed. The plan is to eventially remove the right side of liver along with bile duct and gall bladder in March/April time frame. They are still after me to eat more and not loose any more weight. I have been eating more this week. Still no hair lose, no nausea. It’s been a couple weeks without a blood test. The next CBC will be Monday.

It’s been a few days since I have posted any updates on my journey. Not much new happening. Probably ate to much over Thanksgiving, but what the heck, my nurses said eat any thing anywhere any time. I was a little constipated about a week ago, but with the prunes, grapes, liquid I’m ok. Still no nausea which is good.
This is my off week of treatment, so not sure what to expect. I’m mostly just tired. Usually in the morning I feel jittery/nervous.
I have appt with a interventional radiologist this Thursday to discuss a possible chemoembolization after 3-4 cycles of Gemzar/Cis. Removing the tumor and right side of liver is another alternative being considered.

Thanks Marion for the input. What I have been trying to do is fill 2 x 16oz bottles of water in AM, 2 more in PM and another 2 at night. Currently the tongue issue is minor. Nothing major, but I will keep the candy man handy. I’m just about finished with Gemzar. What I found last week and the same thing this week is the Gemzar hurts when it goes in. All they did was slow it down and everything is ok. They started it on 500 and slowed it down to 400. I told them to remember that the next time I come in. Looks like I will skip next week and start another cycle again in 2 weeks. From what I can guess my days will be Tuesday.

As far as Turkey goes, we will be spending Turkey day with my daughhter. I requested turkey, dressing and gravey. She’s a good cook. Takes after her mom.

Looks like they are coming to unhook me so I can go home. It’s been a long day. No way am I going to be hungry with all the stuff they have fed me today.

Hopefully this week will go as smooth as last week. If you can call this smooth.

Here it is Tuesday already. I’ve been at infustion for about 4 hours. Started off with blood test. All came out normal. The were checking for WBC, HBG and PLAT. Since they have to watch the kidneys so closely, I had a bunch of saline to start the kidney flushing. After that they added the anti nausea meds to the IV. Finally about an hour ago they started the Cis. After that will be the Gemzar. Should get outa here in about 3 more hours. They were concerned about my losing 5 lbs since last week. As a result my Onc nurse brought me lunch of about 1,000 calaries. Seems like Thanksgiving was a good week to come. Lots of good eats that the nurses fixed. Since the SANCUSO anti-nausea patch worked ok last week, my Onc gave me a prescription for more. It seemed to work since I did not have nausea at all.
I did take the recommendation of eating prunes to assist in keeping me regular. They taste ok, and what the heck, if they work why not.

The only thing I have noticed out of ordinary is my tongue was a little raw this morning and I have had a little dry mouth at night time. Still nothing major. I assume my hair will start thinning a little this week.

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