Time for my experience and help
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- This topic has 216 replies, 26 voices, and was last updated 10 years, 3 months ago by lainy.
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June 4, 2010 at 7:51 pm #32365gavinModerator
Hi Carlos,
How did your mums visit to the Onc go today? I do hope that you got some good news.
Best wishes,
Gavin
June 4, 2010 at 4:37 pm #32364lainySpectatorCarlos, we just never know how things will come about or how we will face them. We just do. I always take the stand that it is what it is now let’s get on with some treatment. Some treatment is good as I didn’t hear the words “no treatment”. You have done very well up to now and I believe you will continue to do just as good. Please let us know what the outcome is today.
June 4, 2010 at 4:11 pm #32363marionsModeratorCarlos….I am focusing on “good results.” We try to steer away from the alternative. Thinking of you and crossing my fingers, toes, and everything possible.
MarionJune 4, 2010 at 11:08 am #32362lalupesSpectatorIt’s great to hear from you, Carlos. I hope the outcome of the Onc visit was good.
Thinking of you & your mum.
Julia x
June 1, 2010 at 2:29 pm #32361carlosSpectatorHi;
The appointment that we had was suspended until Friday because “our” oncologist could not come and did not want us to be attended for another person.
How would you face the two possible scenarios;
Good results. no sign of tumor, maintain or suspend chemo?
Bad results: Tumor has recurred, maintain the same chemo, change it, suspend?
Thanks for your time.
May 31, 2010 at 8:10 pm #32360gavinModeratorHi Carlos,
Good to hear from you again and thank you for your update on your mum. I am glad to hear that your mum is doing well and I so hope that this continues.
My best wishes to you and your mum,
Gavin
May 31, 2010 at 5:18 pm #32359marionsModeratorCarlos……I have nothing to add to Kristin and Lainy’s comments other than that I am trilled to hear the great news about your Mother’s response to the treatment. I am wishing for continued success.
Best,
MarionMay 31, 2010 at 1:57 pm #32358kristinSpectatorCarlos, that’s great, we’re so happy for you and your mother! After I finished treatment the first time, I had oncologist appointments and a CAT scan every 3 months. I’m sure the doctor will make a decision based on your mother’s age and condition.
Good luck with everything!
Kristin
May 31, 2010 at 12:56 pm #32357lainySpectatorHello, Carlos, good to hear from you and to know your Mother is doing so well.
Teddy’s regime is to have LABS Monthly and to see the ONC every other month. I also get a copy of the LABS. He has a PET Scan 2 X a year. We hope your Mother has continued success.May 31, 2010 at 7:27 am #32356carlosSpectatorHello to all of you and sorry for the time without inform. After 6 months/ GEMZAR cycles (30 minutes per week) tomorrow we have an appointment with oncologist for the results of last week’s scanner. Tell you that during these six months my mother has coped quite well chemotherapy (isolated cases of fever…) making a living relatively normal. Previous scanner (four months after the operation, Klatskin tumor with two positive nodes) came out clean and the blood test in these months have been within normal limits.
In the previous appointment oncologist commented that treatment was over and from now she should have routine checks directly with the surgeon.
Logically without having the results yet, what would you advice me according to your experience?
Thanks in advance;
CarlosNovember 20, 2009 at 3:49 pm #32355lainySpectatorHi Carlos. Do not think so much as it will all be clear soon. One step at a time. First you get the test results and talk to the Oncologist and then everything will clear up. You will have your answers. There is no clear protocol when it comes to anything dealing with CC. Good luck today!!!
November 20, 2009 at 3:10 pm #32354lalupesSpectatorVery, very best of luck for tomorrow, Carlos.
Julia x
November 20, 2009 at 1:01 am #32353carlosSpectatorHi Lainy;
At this moment I don
November 20, 2009 at 12:06 am #32352lainySpectatorOh Carlos, here I go sticking my nose in! Just from your notes I thought something strange about the Oncologist. She is trying to hide behind what she does not know because if she knew she wouldn’t cop that attitude. I felt it from the beginning. Sounds like an ego problem. This cancer has no room for egos. Of course this cancer is rare in her hospital as it is rare all over, what makes her hospital so special? Again she wants you to think she knows everything. Are you able to just seek a second opinion from another Oncologist? If I am correct all you have to do is take copies of your moms records to whom ever you want to see them? I am not trying to be a trouble maker, but I am concerned.
November 19, 2009 at 10:36 pm #32351carlosSpectatorHi Marion;
In Spain you have assigned an hospital by default but you have the option of changing(called second opinion) to another one that have more experience in the disease. Of course, if you have money you can go directly to a private one. But in Spain the the quality(doctors skills, devices..) difference between public/state and private is nothing, the only one(very important indeed) is that in a private hospital everythig is faster.
We ask for second opinion for the surgery but because of massification we returned to the original hospital for oncology. I don -
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