Time for my experience and help

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  • December 12, 2013 at 6:21 am #32470
    marions
    Moderator

    Carlos…is your Mom swollen in her abdomen as well? Did the blood test include:
    Serum ammonia levels and Potassium level in the blood?
    Hugs,
    Marion

    December 11, 2013 at 6:20 pm #32469
    carlos
    Spectator

    Clarem, Lainy and everybody;

    After the appointment with the oncologist;

    Cat scan; the disease remains the same and the blood test is “normal” for this situation.

    So, oncologist decision has been ;

    After Christmas, continue Xeloda.

    Keep taking forusamide (100mg) and Seguril (20mg).

    As you know i feel my mum in the last weeks like a “drunk” person and i guess that is for diuretic pills (according to the prospect taking for a long time it produces confusion,weakeness …)

    Oncologist says it’s more important to control the swelling…

    What is your opinion?

    Regards;
    Carlos

    December 10, 2013 at 7:54 am #32468
    clarem
    Spectator

    Hi Carlos,

    Infection (amongst other causes) can cause confusion. I would tell the doc.

    December 9, 2013 at 10:29 pm #32467
    lainy
    Spectator

    Dear Carlos, my suggestion, since I am not a medical person would be to call Mom’s Doctor, tell him what is happening and ask him if he thinks he may need to change her medications. Please call him as soon as you can as there is no reason for anyone to suffer in that way. Also tell him about the swelling. Swelling comes with CC and is not pleasant. Please let us know what the ONC says. No one wants to be so confused as it can really be scary. Best of luck.

    December 9, 2013 at 9:38 pm #32466
    carlos
    Spectator

    Thanks Lainy.

    According to him she feels like a zombie especially at morning. And I notice her confused throughout the day.

    Looking at the prospect of aldectone(100mg) and forusemide(20mg) side effects speak about confusing and so on…

    It must be difficult put in a balance side effects and swelling…

    What is your opinion?

    Regards;
    Carlos

    December 8, 2013 at 3:59 pm #32465
    lainy
    Spectator

    Hi, Carlos. I am sorry to hear about your Mom, I hope there is nothing new going on. Sometimes we can feel down when we are used to doing more and our energy level is not good and then it gets so frustrating. Please let us know how the scan turns out and I will be praying for good news.

    December 8, 2013 at 3:21 pm #32464
    carlos
    Spectator

    Hi everybody;

    After several weeks with the pills the swelling has gone down.

    But in the last days(few days) she has weakened very quickly despite being in the week off of xeloda. More time in bed, tired face .. she is realizing that something is not right inside her because she wants to do things but…and sometimes begins to cry.

    It is the first time since the weeks after surgery 4 years ago that I see her so weak.

    We have oncologist appointment next Tuesday for the quarterly CAT scan results after 4 cycles of xeloda.

    thanks for your company;
    Carlos

    November 24, 2013 at 12:42 pm #32463
    carlos
    Spectator

    Marions, PCL1029, thanks.

    I´m very confused regarding swelling.

    She compalins particulary of the legs and feet but i think abdomen is a little bit more swollen than normal.

    And it depends on the days…

    There are days when the bones of the knees and ankles can be seen and other days they are not.

    I think to my mother swollen legs is affecting more psychologically than the disease itself.

    Regards;
    Carlos

    November 17, 2013 at 8:38 pm #32462
    pcl1029
    Member

    Hi,
    DVT=deep vein thrombosis( blood clot around the calf,lower leg or thigh .)

    Warfarin will take care of the problem.

    Again ,I am not the doctor ,so ask your doctor to prescribe the adjument dose.

    Maximum dose for Aldactone is 400mg/day mostly and furosemide is around 40-80mg/day. Both depend on the electrolytes balance of the sodium and potassium this balance is very important, therefore you need the doctor to determine the dosage whether than taking the matter on your own.
    God bless.

    November 17, 2013 at 8:17 pm #32461
    marions
    Moderator

    Carlos….is her abdomen swollen also?

    November 17, 2013 at 7:17 pm #32460
    carlos
    Spectator

    Thanks for the support PCL1029.

    What is the maximum allowed of aldactone and forusemide per day?

    what is DVT? I just ask may mom and she feels some pain in the shin and instep.

    I have to say that after being in bed for four hours with feet under pillows after lunch she has less swollen.

    Regards;
    Carlos

    November 17, 2013 at 5:57 pm #32459
    pcl1029
    Member

    Hi, Carlos,

    Besides ask the doctor to adjust the dose of both medications if not contraindicated to you mom’s current condition if it is caused by edema.
    Ask the doctor to check whether your mom may have develop DVT ,especially in the areas below the knees that may swollen,very firm and painful .

    God bless.

    November 17, 2013 at 5:20 pm #32458
    carlos
    Spectator

    Hi everybody;

    Nothing changes after 4 days with aldactone 100 mg and furosemide 20 mg regarding swelling.

    it takes more time to see the effects?

    Regards.
    Carlos

    November 13, 2013 at 10:49 pm #32457
    marions
    Moderator

    Carlos…probiotic and Creon ( pancrelipase) might help reduce your Mom’s heartburn. Please discuss with physician. Congratulations on the good blood test results.
    Hugs,
    Marion

    November 13, 2013 at 8:48 pm #32456
    lainy
    Spectator

    Hi Carlos, perhaps one of the new Meds is upsetting her stomach but I would absolutely let her ONC know, he should aware of anything new! Good news on her LABs.

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