November 29, 2017 at 11:08 pm #96168debnorcalModerator
I was also happy to read of Steve’s second anniversary of surviving with CC. His success is remarkable and so very encouraging to others. Thanks so much for posting. I look forward to reading more of Steve’s blog entries, as well as many more anniversary postings!
debbieNovember 29, 2017 at 11:46 am #96167gavinModerator
Thanks loads for sharing that news about Steve with all of us, and for his blog as well. And I do hope that Steve will continue to keep on writing that blog for a long time as I know that stories like his do help and inspire others as well, so keep on writing it. And posting here as well!
From what you have said, it does indeed sound like Steve is living life to the full and that is great to hear! No doubt there will have been a lot of hard times along the way as you say but he sounds like he is such a fighter with a great team around him and long may his fighting spirit continue. Keep on kicking that CC butt!
My best to you and Steve,
GavinNovember 28, 2017 at 9:15 pm #96160teresamarydeParticipant
Mary and Catherine:
Thank you both for your kind words and support. I am glad that you like Steve’s blog. I, of course am biased but I do think that he is a gifted writer. The survival stories on this board have inspired us for the past two years and we are glad if in some small way by sharing Steve’s story we can help others.
TeresaNovember 28, 2017 at 3:52 am #96154middlesister1Moderator
Thank you for sharing such a special milestone and Steve’s blog. I just read the few most recent posts, and they showed how Steve is not just surviving, but truly living with CC.
Best wishes to the both of you for continued success,
CatherineNovember 27, 2017 at 9:20 pm #96151bglassModerator
Thank you for sharing this update – and the happy news of your husband’s two year anniversary. An uplifting milestone and testament to both of your determination to push for good care and to keep moving forward. Your story will bring much hope to many on the discussion board. Chemotherapy is a tough road, but as you describe, it can bring substantial benefit.
I am a fan of your husband’s blog and encourage board readers to check out the link.
Regards, MaryNovember 27, 2017 at 8:00 pm #96150teresamarydeParticipant
I haven’t posted much on the discussion boards but I do read them regularly and greatly appreciate the wealth of information and the wonderful community you all provide.
This past weekend marked the two year anniversary of my husband’s diagnosis and I wanted to take this opportunity to share with you an update.
Two years ago, my husband Steve received his diagnosis: stage 4, inoperable, intrahepatic cholangiocarcinoma. Steve has been on palliative chemo since December 2015 and I am pleased to share that he is doing well and while he has active cancer in his body, he is strong and living an active and fulfilling life. He has been on 4 different chemo regimens and there have been some hard times but thankfully, overall he is doing well tonight, on the 2nd anniversary of his diagnosis. There are many things that we have learned over the past two years living with this cancer. His medical team at MSKCC has been amazing in their care and treatment. We pay careful attention to his diet, eating fresh and organic food when possible and protein shakes daily. He exercises regularly with long walks 4-5 days/week. We value every day as a gift and try to live each day to its fullest potential. Steve is writing about his experience on his blog: https://nowwithouthesitation.blogspot.com/, which provides, in his own words, a lot more details on his treatments and experiences living with Cholangiocarcinoma.
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