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  • #41602
    lainy
    Spectator

    KMWMSM, wow what a story!!! ANd what a great outcome. You have done extremely well and I for on e am very proud of you, indeed. Now I will corss everything I won for a good outcome when he has his surgery. And by the way, KUDOS to the Family Doctor! Chin up, stay strong and keep us posted.

    #41601
    dmeek
    Spectator

    kmwmsn, I’m sorry to hear all your husband has been through lately. I wish him the best, and prayers for success on his initial surgery on Friday.

    Dale

    #4007
    kmwmsm
    Spectator

    My husband went for a second opinion on Thursday about exactly what to do. We live in VA and when he was first diagnosed we were sent to NC to the Baptist Hospital. I had heard good things about this hospital, however our time down there was not so good. The doctor acted like my husband was only more money to him and was not very compassionate. He would not answer any questions we asked him. He did not have a good bedside manner. Since he was jaundice he had the biliary stents put in. The tumor is located at the confluence of the right and left bile ducts so he had to have two stents. The tumor is only 1.5 cm in size so that is good. When they put the stents in the knicked the bile duct and did not tell us. A week later I am rushing him back to the hospital in kidney failure because of the infection that had set up. The doctor in the ER told me if I had waited one more day he would have died. Thank god the tube started showing signs of infection. He spent a week in the hospital. They put bigger stents in while he was there and capped them off to the outside so he would drain inside. He came home feeling alot better. We talked about the doctor and how he did not make us feel really comfortable but instead of doing anything we scheduled a liver resection surgery. He ended up getting an earache and went to see our family doctor and something didn’t sit right with him about all of it so he sent us to UVA to get a second opinion. He went to UVA on Thursday and the doctors are so nice up there. I couldn’t be with him because I am a full time student so the doctor called me himself so I would know everything going on. The cancer has not spread anywhere. It is confined to the bile duct. On Friday September 17th my husband will have surgery at UVA to cut off the blood supply to the right lobe of his liver to make the left lobe engorge and grow. About 6 weeks after that they will do the liver resection. He prefers not to do the transplant because he is young and will be at higher risk for diabetes and so forth. Not to mention the medication he will be on the rest of his life.
    The first thing the doctor did was a biopsy of the lymph nodes around the tumor and then he ran a camera down his throat to look at the tumor to make sure he could do the surgery.
    All in all we were told if we would have went through with the original surgery I probably would have lost my husband because there was not enough of the left lobe of his liver to function.

    I will let everyone know how the surgery goes on Friday.

Viewing 3 posts - 1 through 3 (of 3 total)
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