I’ve reached the 1 yearversary of my diagnosis. Had my PET/CT scan last month which showed no recurrence of cholangiocarcinoma local, or distant. Completely clear. CA 19-9 is 10. My oncologist says I’m officially in remission. I’m really grateful for this forum and for the encouragement, stories and informational support provided. For those of you still in treatment, please know that I’m praying for you. You are my heroes.
After resection surgery in June, Xeloda treatment started in August, added 6 weeks of radiation treatment to Xeloda/lower dose in September, back to full dose Xeloda in November, down to my last two weeks of treatment. CA19-9 is down to 9, all other lab numbers look good, white cells are low, but will recover. I’m in as good a place as I could have expected to be at this point. Have to wait 4 months for CT and PET scans so radiation inflammation can reduce. Regular lab work in the meantime. Fingers crossed. Happy Holidays everyone!