June 30, 2010 at 3:41 am #39366linda-zSpectator
So sorry to hear of your latest pains, but by now I’m hoping you are feeling much better. And I wish you all the best in your treatment with Xeloda.
Linda Z.June 28, 2010 at 11:51 pm #39365mlepp0416Spectator
Just thought I’d share some positive news with you. Tom has been on Xleoda and his tumor has shrunk from 1.5CM to 1CM…so it does work to shrink those CC tumors….
Go with God and KEEP KICKIN’ THAT cancer. Glad to hear you were able to be there for your daughters birthday party.
MargaretJune 28, 2010 at 10:19 pm #39364jemimaMember
Sorry to hear your latest news. I hope you managed to have a good time at the party anyway, and that Mayo can give you some answers.
It’s good that you are less tired/nauseated though.
Best wishes from me
JemimaJune 28, 2010 at 8:18 pm #39363lainySpectator
Hi Rick, sorry about the turn ovevents. Sending you many good wishes and prayers. Have a wonderful Kid’s Party tonight.June 28, 2010 at 7:43 pm #39362devoncatSpectator
Sorry about the pain…perhaps it is chemo related. My landlord (a doctor) was estatic I had pain and generally felt like pooh on chemo. He said that was a good sign…dont really understand why.
Another chemo treatment to try is 5FU. Xeloda came out of that, but for some reason we have seen people on this board respond to one and not the other. I guess it is how your body metabolises things.
Crossing my fingers for chemoebolization and good news regarding xeloda on your next scan. Hope the pain is under enough control that you can enjoy your daughters birthday.
Hang in there.
KrisJune 28, 2010 at 6:01 pm #3708rick-kampMember
Thursday and Friday last week I started having some terrible pain in the abdomen and RUQ. I managed ok with my pain meds on Thursday but by Friday AM it was worse so I called the Cancer Center and they wanted me to go into the Emergency Room to have pain meds, fluids, and a CT Scan. So, after a few doses of morphine, a couple bags of fluids, and a CT scan we still had no idea what was causing the increased pain but at least it was brought back under control. Since my daughter’s birthday party was that night, I wanted to get out and try to manage the pain on my own so I could be there. So far, it hasn’t been too bad – but I’m definately feeling more pain than I was before. And the CT scan doesn’t show anything new or worsening so we have no idea what is causing this.
So – I am anxiously awaiting my return trip to Mayo to see if they can shed any new light on this. Of course I am concerned about progression as I’ve had a bit of bad news on the cancer front lately. I started on the Xeloda regiment and have been on it for about a week and a half now so we are hoping that will be effective. I am enquiring about chemoembolization at Mayo and my physician there says it is a possibility for me but wants to discuss it in more detail at my appointment later this month. I just hope that something will stabilize the growth that I’ve seen recently and maybe even some improvement. It seems like we’re getting to the end of the line as far as chemo goes (started Gemox – developed allergy to Oxaliplatin, then moved to Gemzar/Tarceva which resulted in treatment failure, now on Xeloda) – but maybe there are others out there if we need to move on from the Xeloda.
On the positive side, I don’t have as much nausea or fatigue as I have over the last several months and feel that the Xeloda chemo regiment is easier to handle than any of the past treatments. So – that is the latest developments for me. Hopefully no more pain issues or hospital visits.
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