November 26, 2011 at 5:32 am #54819
Thank you so much for all of your kind words. I am trying to take each day as it comes. I am thankful for the time we have with Mom.November 21, 2011 at 1:53 pm #54818ashleycSpectator
I have been exactly where you are, a hopeful daughter. Life, stress, money, the feeling of drowning in everything that you have no control over can make you feel like you’re in pain, lost and spinning out of control. There are things than WE cannot control and as much as we want to fix it or find a way, the one and only thing I have found to do…is like you said…Trust in the good Lord. He will never fail us and will give us the strength to move forward. Philippians 4:13. You are doing your very best and although it may not seem like enough, just remember that faith and the grace of God can take you a long way. Take some deep breaths and enjoy each and everyday!
AshleyNovember 20, 2011 at 11:51 pm #54817pamelaSpectator
Dear Hopeful daughter,
You are definitely not alone. I keep thinking my urine looks darker than it should. See Lainy-I do that too. If I feel itchy, I start to freak out. Or get a pain in my side. I think it really is just dry skin and a gas bubble, but you can’t help think things like that. When my daughter, Kristen, was in medical school, she thought she had a brain tumor and one of her classmates thought he had every single disease they studied. I think it is just human nature. I think everyone faces financial difficulties no matter how much income they have. My husband has a really good job, but I quit my job to care for my Lauren, so we had to adjust. Plus all the driving to Michigan and turnpike tolls add up. I hope things get easier for you. I am here to offer support. Take care.
Love, -PamNovember 20, 2011 at 11:37 pm #54816jennifersMember
Hopeful – I have become an absolute hypochondriac as well. I have to really talk myself out of having a complete panick attack any time I feel anything out of the usual at all. In the last month, I’ve convinced myself that I have ovarian and bone cancer, and then I’ve had to really work to tell myself that I am being silly! I wonder what ailment it will be next month!
Thinking of you and your family, and hoping you can get the money situation under control – it’s an added stress that certainly isn’t needed!
JenNovember 20, 2011 at 7:41 pm #54815jessiesgirl67Member
Hi. I can’t help with very much, other than to tell you that we struggled, and struggled and continue to struggle with money while mom was sick. Sometimes you just wish somebody would give you a break. We broke down and got a car title loan. For a little while, it helped us breathe. We’re paying it back now. Is there any relative you can reach out to, to help you until you can get back on your feet?
Having a financial issue on top of this with your mom is just so bad. Please check on the resources around you. I know you trust in God, but you must also know that there are people who are willing to help.November 20, 2011 at 2:00 pm #54814lainySpectator
Darn! I forgot, you mentioned that before. The only other thing I can suggest is clear broths. I had a colonoscopy Tues. so with the prep had to do the liquid thing and although I cook with Swanson Clear Broth (the one in the box) I never just used it solo. It was quite good. It’s just not fair that so much is wrong and CC seems to have a mind of it’s own!November 20, 2011 at 1:34 pm #54813
Mom is a very brittle diabetic now so We can’t do the carnation instant breakfast with her. But thank you for the suggestion. That is what gave us the idea to try the glucerna. It does seem to be the one thing she can consistently keep down.November 20, 2011 at 6:39 am #54812lainySpectator
Hi Hopeful Daughter. I am going to break some news to you…..you are perfectly normal. A lot of us get very scared about things that happen to us when taking care of a CC patient. Remember that CC is silent…nothing to alert you in the beginning. I had found myself even checking my urine for color!!! Glad they caught your Mom’s infection early, that is great. For an energy drink I gave Teddy Carnation Instant Breakfast (highly recommended by Hospice). He liked Vanilla best and I would put it in a blender with a banana. Carnation has all the Vitamins and everything you need and you can totally have a drink to replace a meal when Mom doesn’t feel like eating. Many patients find Peace in their religions and who are we to argue, can’t harm anything, that’s for sure.
Prayers are going out to your Mother but you need to be kind to yourself, take care and please keep us posted.November 20, 2011 at 5:09 am #5946
Life has been hectic. Mom started chemo. She has had almost a full 2 week round of gemcitabine, xeloda and avastin. She started to get an infection in her bile duct again but we caught it early and were able to treat it with oral antibiotics. She is having so much trouble with nausea. We have found that glucerna shakes help her but it is so expensive. Medicaid refuses to help cover it. She has lost >40 lbs now. She is determined and believes that god can heal her. The text word at church the week before chemo was, “I can heal you.” We are going to believe that and fight to keep her going until he can heal her. I have also found that I am becoming a hypochondriac of sorts. Every lump I find or different pain I have is sending me into panic mode. Every time I turn around we have some other issue come up that requires large amounts of money. Some days I feel like I am drowning. I really need to take a deep breath and put my trust in God. I know he will help in his own time and in his own way. I need strength. Please keep my mom in your prayers.
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