Update on Roberts treatments.
- This topic has 16 replies, 8 voices, and was last updated 11 years, 10 months ago by
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Hi,
If I may, I will not recommend radioembo for treating CCA But rather use chemoembo. Based on the mortality of the patients population on this forum.
Except the very young patient who did have radioembo done and still around.
Most of the people who had radioembo in the links that Marion mentioned above are no longer here. I suspect this is related to the toxicity o f the radiation that the older patients had a hard time to recover from it.
As you may know, I am only a patient of this disease for 45 month, and absolutely I am not a doctor.
God bless.I don’t have this experience but just wanted to wish you the very best for tomorrow. I think it is a very wise thing you are doing. Here is wishing for a good meeting!
Good luck, tomorrow. Until others have a chance to respond I thought to enclose a few postings:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7925
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3259
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7675
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=938Hugs,
MarionHi everyone, I am taking Robert up to Moffitt tomorrow and hope to get a second opinion with the radiation oncologist for a new radiation therapy invoving injecting 90-y glass beads into the tumor with radioablation. Has anyone had any experience with this?
Hi,
Yes, the CCA can spread to abdomen area like the omentum ,bones and lungs.
If the patient is female, it can spread to the ovaries.
God bless.13carats…although, people differ, we have had several reports of metastases to lung and to bone. One person in particular stands out; our JeffG:http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=579
and
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=688
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1405Others may also want to share their thoughts with us.
Hugs are heading your way.
MarionRobert had the pet scan and some areas lit up that I have not heard are indicative of cholangiocarcinoma. Have you ever seen pelvic bone mass or small nodules in the lungs from this tumor.? He still feels great but the treatment may make him ill. Let me know…thanks, nancy
Great news on the huge shrinkage. Hoping the PET goes well too. All the best to you and Robert.
Love, -Pam
Hi i3,
Thanks for the update on Robert and a 33% reduction in his tumour is good news! My fingers are crossed for good news for the pet on the 18th and please let us know how that goes. If more chemo is on the cards then my fingers will be crossed for that as well.
Best wishes,
Gavin
WOW! 33% is pretty respectable as far as shrinkage goes. Let’s hope for some more good news later, heck why stop the good news now! I love all the early Christmas gifts our Board is receiving this year.
Thank you all for all your good thoughts and prayers. In this holiday season when this illness takes on a life of its own, your well wishes bring us hope. Robert had a cat scan the other day and it showed that his chemo treatment of gemzar and oxciliplatin had reduced the tumor by 33%. but some tiny specks have now appeared outside the lung. He is going for a pet scan on the 18th but it looks like more chemo is up the pike. I will let you know how it goes. Meanwhile, Happy Holidays to all!
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