Discussion Board Forums General Discussion update on tom

Viewing 13 posts - 1 through 13 (of 13 total)
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  • #82679
    sunny
    Member

    Have you looked at essiac tea and also Budwig diet they are alternative therapies but if conventional medicine can’t help maybe it’s worth looking into. I’m sorry you find yourself at this point, a reoccurence is what we all fear. You could also ask for a second opinion x I have everything crossed for you x

    #82678
    moontje
    Participant

    thanks snowbord for the information…very helpfull…

    we wil give it a try because there is nothing else we can do..

    thanks again moontje

    #82677
    snowbird
    Member

    Moontje – I can tell you a little about the cannabis oil. My husband, Ron, was able to try the cannabis oil, which was manufactured by the Rick Simpson formula, not long after he was diagnosed with cc. At that time Ron was very ill, vomiting and not able to each much. The oil did help with those symptoms, but it didn’t do anything to shrink his tumors. It was a strong strain of cannabinoid and he did not like the effects of it – being “high” all the time. From what we have read about the oil, it has worked well for people that have seizures or brain tumors. We know that it didn’t shrink his tumors because he was off chemo for nearly 6 weeks and was using the oil this entire time. He had a scan after the 6 weeks off chemo and the tumor increased in size by 3 cm. However, like I said, it did help with nausea and increased his appetite. Godspeed!

    #82676
    moontje
    Participant

    THANK YOU ALL VERY MUCH…

    HAS EVER HEAR OF CANNABIS OIL… FOUND SOME GOOD THINGS TO CURE CANCER…

    THAT MEN LIVES IN CANNADA AND HIS NAME IS RICK THOMPSON..WE ARE GOING TOO TRY IT…
    HERE IN THE NEDERLANDS THEY CAN DO NOTHING FOR TOM , SOO WE ARE STAND WITH OUR BACK TO THE WALL… HOPE THAT SOME ONE NOWS ANYTHING ABOUT IT..

    THANKS FOR LISTENING TO US

    MOONTJE

    #82675
    moontje
    Participant

    THANK YOU ALL VERY MUCH…

    HAS EVER HEAR OF CANNABIS OIL… FOUND SOME GOOD THINGS TO CURE CANCER…

    THAT MEN LIVES IN CANNADA AND HIS NAME IS RICK THOMPSON..WE ARE GOING TOO TRY IT…
    HERE IN THE NEDERLANDS THEY CAN DO NOTHING FOR TOM , SOO WE ARE STAND WITH OUR BACK TO THE WALL… HOPE THAT SOME ONE NOWS ANYTHING ABOUT IT..

    THANKS FOR LISTENING TO US

    MOONTJE

    #82674
    darla
    Participant

    Dear Moontje,

    I too am sorry to hear this. I agree with Lainy that another opinion is need at this point. Let us know how things are going. Thinking of you and Tom.

    Love & Hugs,
    Darla

    #82673
    lainy
    Participant

    Dear Moontje, I am so sorry to hear this news. What I suggest is to get another opinion immediately. Get copies of all Toms Labs and Scans so you can take it to another ONC and see what he has to say about the latest Scan. Wishing you the best but a 2nd opinion is definitely in order. Be Strong! We are all here for you!

    #82672
    moontje
    Participant

    hello everyone…
    has the results from the scan..

    they found a tumor and several metastasen…there is nothing to do the onc says…
    but can any one tell me what too do… please advice us…what to do…heartbroken…..

    thanks moontje

    #82671
    gavin
    Moderator

    Hi Moontje,

    Thanks for letting us know how Tom is doing and I am glad to hear you say that he is doing great and is working fulltime again. I too can not answer your question for you but hoping like the others have said that it is just scar tissue. You will find out more after the meeting with the med team to get the scan results and please let us know what is said. In the meantime, I will keep my fingers crossed for good news for Tom. I know what it is like waiting for the results to come through, grrrr to that! Please stay strong and you know that we are here for you.

    My best to you and Tom,

    Gavin

    #82670
    marions
    Moderator

    moontje…..do you mean to say that Tom has a “lesion” in his scar tissue? Hoping that it is scar tissue only – we have few reports on that. Hang in there, stay positive.
    Hugs,
    Marion

    #82669
    lainy
    Participant

    Dear Moontje, I do believe you may have to wait until your ONC visit after the Scan to know more of what is going on. On the other hand it is good that Tom has been doing so well. Sometimes along the scar line it is possible to develop something that could feel like a nodule or even a small hernia, my Teddy had that, so please try to think positive or as we say realistically optimistic. IF and I say IF the CC has returned there the good news would be that you caught it very early. I know its easier said then done but please try to relax and we call what you feel “scanxiety”. Please do let us know what happens.

    #82668
    darla
    Participant

    Hi Moontje,

    Good to hear from you. Glad to hear that Tom is feeling great. Sorry I have no answers for you on this, but am hoping it is just another bump in the road. I’m sure there are others who will chime in with help soon. Please update us when you can as to the results of the pet scan etc. Thinking of you and hoping all goes well.

    Love & Hugs,
    Darla

    #10092
    moontje
    Participant

    hello everyone…

    tom is doing great..he feels fine is fulltime working. but i have a question, he had a check up last week..and they found a lobe in his scar tisschue..and they say it is back..is it possible to have a tumor there..his blood is good, now evedence of cancer..we are so scared..next week we have the results of the pet.ct scan,and the punction..i hope some one can tell me something about it…
    thanks for beiing here for us….

    moontje

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