update on tom

I know what you mean Moontje. Trying to stay calm during all of this is not easy I know, but I think you will be able to make better decisons and deal with everything if you can stay calm. Again hard I know sometimes considering everything that you are dealing with right now.

Hugs back to you,

Gavin

Hi Moontje,

I agree with what Duke says here, please do not panic! Try and stay strong and remember what has got you both through these 7 years. As you both know, yes this is a rollercoaster and you have been through a ton of up’s and down’s so far. Do not panic and try not to think the worst either as that won’t help right now.

I hope that you get some good news from the upcoming scan results and please let us know what they say and also what Tom’s medical team recommend. Loads of positive thoughts are coming over the North Sea to you and Tom.

Hugs,

Gavin

First thing is to eliminate the desperation. You’ve made it through seven years, this is not the time to panic. Take a deep breath, or as many as you need. Look into Tom’s eyes and take strength from him. I am the patient, but sometimes I think it’s harder on the primary support person. You’ve been doing your best for all these years and you have so much to show for it. I’m not sure how this idiom will come over, but “keep on keeping on.” ==> Don’t give up. Treasure every moment you have and look for miracles where you can find them.

As for a second opinion, that will be endorsed by everyone on these Boards. So much has been learned in the last few years that was not even suspected seven years ago. Look at all the reports Gavin has posted.

There are excellent centers on the East coast in New York, Boston, and elsewhere you can go to for a second opinion.

Duke