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Betty,

I still think of your husband and always think of how you are doing. I feel like I knew him because of following the blog for so long. I lost someone to this cancer and I feel like it is getting harder not easier. I get scared that everyone will forget, but I know that will not happen. Will you do something in your husbands memory? I am trying to think of something to do in my loved one’s memory. I have some bad days and good days. I wish there was a monument for our loved ones as this is such a rare cancer. Please know that you are in my prayers and I am sure we all pray for each other on this website.

It makes me feel good to read words from both Betty and Teresa. I do not know how to describe how I feel sometimes, but you both understand. The only thing that bothers me is that sometimes I feel so angry. My mom not once complained or got angry. I do not know how she remained so posiitive with all her pain. I understand that I should not be angry. I do not want people to forget all the special people that have passed away from this terrible cancer. I just want to do something and I look forward to the foundation. I do not know if you guys feel the same way, but I want to do something special for these people and I just do not know what to do in addition to helping with the foundation. Does anyone have any ideas, because I do not want people to forget my Mom or Sam or Dan?

Betty,

I did not know Sam, but I felt like as if I knew him. I worried and prayed for him when you did not have updates. I think I know exactly how you feel and what you went through, because my Mom passed away just seven weeks ago. The experience you had with Sam is exactly what we went through with my Mom. I wanted so much to email you, but I was going to my Mom’s house everyday and you understand the rest. I wanted to help my Mom everyday and spent any free time researching this rare cancer. Only someone that has gone through this experience can really understand. I think about my Mom everyday and am trying to figure what we can to honor her. Sam reminds me of my Mom. I cannot thank everyone enough for all their work on this site. I wish I could help the people that are still going through this experience. I look at this website all the time and pray for everyone. I look forward to the foundation. I wish their was something unique and elegant that symbolized this cancer because we need awareness for this cancer.