amangeloff
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Dannigirl,
I am sorry to hear that you and your Mom are going through this. We have been a patient of Dr. El-Khouiery for a year now. He has been realistic about the challenges we face but also instills hope and is our biggest advocate. He has taken excellent care of my husband and is always in touch with the latest and greatest in cholangiocarcinoma research. I think your mom is in wonderful hands. Please let me know if you have any questions about our experience.I wish you all of the best! We are up at USC almost weekly if you ever need to talk in person.
My husbands oncologist is Dr. Anthony El-Khouiery at University of Southern California, Norris Cancer Center. He is one of a handful of oncologists whose area of research is CC. He travels the world going to meetings about Hepatobiliary tumors. He is also a really great guy and a straight shooter.
His surgeon was Dr. Yuri Genyk at University of Southern California. This man not only has miraculous hand, he is also a very dedicated doctor. I cannot say enough about what a great job he did in making my husband cancer free. He was in surgery for 17 hours!
Thank you to everyone for your words of encouragement. My husband continues to be cancer free. Unfortunately he has continued to have many complications from the surgery that got rid of the cancer. He developed multiple abscesses in his liver and then a benign stricture of the bile duct which required a biliary drain. He still has the drain (3 months now) and has had many infections which required severals rounds of iv antibiotics. He also has dumping syndrome for which we tried octreotide. After a few doses he developed nausea, a feeling of fullness and dizziness. This has persisted for 2 days such that he cannot get out of bed. I wondered if anybody else has had a similar experience with octreotide? It seems like a wonder drug but has not worked wonders for him thus far.
Thanks!
