April 2, 2022 at 8:41 am #101596PatrickfParticipant
Treatment at UTSouthwestern has been outstanding. I am Stage IIIa ECC.
Dr. Yopp performed my Whipple robotically. In and out of the hospital in 5 days.
Dr. Beg has been my medical oncologist for the past year and been so good to work with. Six months on capecitabine ended in Oct 2021. Dr. Beg has moved into research so I will switch to Dr. Hsieh next visit in 90 days.
Nurses, staff, facilities all terrific.April 13, 2017 at 2:30 am #30019
Thought to revive this thread once more. Your information is greatly appreciated.
MarionJanuary 11, 2017 at 11:11 pm #30018maikkiParticipant
On December 19, 2014 I had a successful liver transplant (living liver donor) for intrahepatic cholangio. I was treated and continue my follow up care at Mayo Clinic in Rochester, MN and I can’t say enough about these amazing doctors.
Dr. Gregory Gores – Hepatologist
Dr. Steven Alberts – Oncologist
Dr. Charles Rosen and Dr. Julie Heimbach – Transplant surgeon
I did 6+ months of adjuvant chemotherapy at Johns Hopkins here in Maryland where I live, but followed a Mayo Clinic protocol of gem/cis and really consider my main doctors those on my “team” in Minnesota. I am just over two years cancer free and I truly believe the Mayo Clinic is responsible for this survivorship!January 10, 2017 at 6:12 pm #30017
Please be so kind and share your treating physicians names with us. It’s greatly appreciated. This thread has been viewed in excess of 90 thousand times. Clearly it fills an enormous need.
MarionNovember 20, 2016 at 11:33 pm #29975lainyParticipant
Dear Barry, your help is graciously accepted. No thanks here is needed as I assure my reasons are perfectly selfish and that is it all makes me feel so good. Your attitude will get you far and we fully accept any help you are able to give us.November 20, 2016 at 10:06 pm #29976growinga2ndliverMember
Thanks Lainy for your warm welcome and response. And thank you and the other moderators, members, and contributors to making this website the absolute best source of cc information on the planet!
I am also greatly appreciative of my surgeon and his team at Columbia Presbyterian.
It is still a little early in the game for me, but I currently feel that I have received a second chance on life… for as long as it takes me. I want to use some of that time to try to help others that are being impacted by cc.
BarryNovember 19, 2016 at 2:05 am #29981lainyParticipant
Dear Barry, MAZEL, MAZEL on your successful surgery, it is the goal all CC patients strive for. And for my non Jewish family here Mazel means the ultimate congratulations in Hebrew. I love your name as my brother is Barry as well. With all that aside WELCOME to our remarkable family and we are over the moon about your post. Yes, you were in great hands as we know Presbyterian in NYC. You are a prime example of why it is so important to get other opinions. Thank you so very much for posting of your success as many on this Board need to read about hope and miracles and that they do come true. Please keep us updated on how you are getting along as this is so very exciting.November 19, 2016 at 1:55 am #29982growinga2ndliverMember
I had a successful liver resection in April, 2015 by Dr. Jean Emond at Columbia Presbyterian in NYC. Dr. Emond and multi-disciplinary team utilized some cutting-edge surgical techniques, while other leading doctors did not consider me a surgical candidate.
Afterwards, I had adjuvant chemotherapy with Dr. Stephen Grabelsky at Lynn Cancer Institute in Boca Raton near where I live. Dr. Grabelsky, the nurses, and my foot masseuse(!) helped me through the process.
I couldn’t be any happier with my difficult choice for treatment options and care during those life- threatening months.September 16, 2016 at 11:08 pm #30000whatnowParticipant
Going to Phoenix (Gilbert), Arizona MD Anderson Cancer Center. Dr. Kundranda is the gastro specialist. He and the staff are very nice. I need to ask more questions.
The Chemo on 3rd floor is wonderful. Great nurses, volunteers, food. drink, private rooms with TVs. Plus the place has valet parking and that makes me happy.
To the person before me DO NOT GIVE UP NOR LET YOUR MOTHER GIVE UPSeptember 15, 2016 at 2:42 am #30016
Thanks to all for contributing to this important thread. Please continue to do so.
MarionJuly 19, 2016 at 8:51 pm #30015
pinklady….thank you, thank you.
MarionJuly 19, 2016 at 2:38 pm #30014pinkladyMember
US physicians, so far:
Dr. Patricia Jones – Hepatologist
Dr. Lynn Feun – hematologist-oncologist
Both at the Sylvester Cancer Research Center of the University of Miami.
We also got a possible referral for Dr. Yakoub (surgeon) and I am aware that there is a Dr. Merchan (heme-onc) on the tumor board as well, but we have not seen them.
Hope this helps.July 16, 2016 at 3:40 pm #30013
Thought to revise this thread once more. The information you provide is of great benefit to all.
A big thank you to our international members.
MarionJuly 7, 2016 at 1:15 pm #30012RandiParticipant
That’s great news Kris!! So glad to hear it.
Hugs -Randi-July 7, 2016 at 1:40 am #30011kris00jParticipant
Third update for me! I’m now enrolled in another clinical trial with Dr. Nevena Damjanov at Penn Presbyterian Abrahams Medical Center. It’s a longer drive, but in 8 weeks it’s working!
And I still get to see Dr. Denlinger at Fox Chase every once in a while so I’m happy. Dr. Damjanov is a very caring onc, too. I feel like I’ve known her longer than I have.
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