andie
Forum Replies Created
-
Posts
-
Thanks so much for all your ideas. Dad has been given straps but the idea of the carabiners sounds good. I’ve just been to see him and he’s under the impression it is not permanent and they’ve decided to do this so he can get his chemo quicker. Will know more tomorrow when the doctors have been round. One of his metal stents has kinked, and they have mentioned trying to insert a plastic stent but at the moment with plastic stents having to be changed more often it would probably put back his chemo. More waiting. Mom was a bit upset but I said at the end of the day, he’s still with us, still feels well so that’s all that counts.
Once more thanks again.
Best wishes to all of you
Hi,
Just going to see Dad. They have cleaned out his stent and fitted him with an external drain. He is a bit upset about this as he already has a iilestomy bag but the surgeon said this would be the quickest way to get his bile level down for him to have chemo. Mom mentioned something about his metal stent kinking but I will know more when I’ve seen Dad in a bit.
Any advice on external drains would be welcome, the main one how do you keep them hidden under clothes. Dad doesn’t want it to hang out and be on show, is this possible?
Best wishes
Andrea
Thanks Marion,
Any bed would have done but a private suite is a big big bonus. They were bringing us pots of tea and sandwiches. Pity he’s nil by mouth this morning as the breakfast menu looked lovely. I just hope they keep him in there after the procedure. He’s just text me to say he’s got his white stockings on ready, so hopefully he will be first down and we can visit him later. The last twice he hasn’t gone down to theatre until late afternoon and he’s been fast asleep at visiting.
Best wishes
Hi, in the UK it has to be 50. At one point my Dads bilirubin was in the high 400’s. Once the stent starts working it can come down pretty quickly. My Dads once fell nearly 150 in 2 weeks. Don’t be alarmed if it comes down and goes up slightly a few days after the stent goes in. This has happened to my Dad twice and it’s sometimes due to inflammation of the ducts.
Best wishes
Andrea
My Dads only symptom has been jaundice, luckily no pain. He has been jaundiced for 7 months now, on and off becasue his stents keep blocking. Hopefully it will be third time lucky and chemo can start
Kate,
I have been keeping on top of this and the date has been put back until 28 November. Hopefully Dad will be sorteby then but if not it is something I will mention.
Thanks
Julie,
Wishing you lots of luck for the scan. If it’s any help my Dads scan hasn’t changed since March and he’s had no treatment at all. Not sure if it’s luck or that his form of cc is very slow to grow BUT he has proved the original doctors prognosis of 2-3 months wrong. Always trust your instinct and if your not happy change oncologists/doctors.
Best wishes to you both
Hi Julie,
My Dad is due to start Gem/Cis Chemo once his bile level is low enough. When we met with the Oncologist we were told he could have it for a max of 6 months before the body would need a break. I presume after a break of a few months it may be able to be started again or a different chemo combination may be used.
I’m sure someone who has actually had Chemo will be along soon to answer your question inmore depth.
I’m so glad your husband has had good results with it, did they say if it has shrunk the tumour?
Best wishes
Thanks all, our patience is really being tested. Took Dad in at 7.30am and he phoned me at dinner time to say it had been cancelled due to an emergency so could I fetch him back as he’d had to give up his bed. More waiting. They only do these procedures Mon, Wed and Fri, so it will either be Fri or Mon. I can appreciate that someone else must be worse off for this to be cancelled but Dad is also a priority as he needs his chemo. Rant over!
Jemima, one of the nurses who took part in the organising of the ABC 02 trial told my Dad side effects of this Chemo tended to be mild, and nausea was the main one but could be contolled with meds. I hope when my Dad finally gets it he deals with it as well as your Mom.
Best wishes to everyone
I’d also like to welcome you to our cc family.
Your post was wonderful to read as my Dad was too diagnosed with inoperable CC in April. Due to problem with his stents he hasn’t been able to have chemo yet. His recent CT scan showed no change since March and that’s without treatment. So much for the 2 – 3 months he was originally given! Apart from the Jaundice he still feels well and has a healthy appetitie.
I will pass your story on to him as he at times gets anxious he is not getting his treatment.
I think positive attitude plays a big part in the fight.
Best wishes to you and your family
Thank you all for your kind words.
As the day is getting closer i’m getting more anxious, Dad has never had a straight forward stent procedure, a 2 day procedure always seems to turn into a week or more. I really am hoping for 3rd time lucky. Atleast we haven’t got to phone for a bed this time, he has got to be in for 8am wed, but he is insisiting I get him there for 7.30 so he is first in!
Jemima, I wish you and your Mom all the best for her forthcoming scan. When my Dad asked if there had been any change on his scan I held my breath what seemed like forever, but everything was ok, and that’s with no treatment. I reackon Dads tumor is laid back, like him!! How is your Mom coping with her Chemo?
Kimk, yes they are a pain in the neck!
Gavin, I’m trying to focus on the positive but as you know sometimes it can be very hard, but Dads still eating and feeling well so that’s another good sign. Mom thought his itching was back as he was scrathinh his legs madly, when they looked he’s been bitten all over his legs due to the nats when mowing the garden!
Lainy, I will be keeping my chin up, don’t you worry, I have developed your fighting spirit that is contagious in your posts. Love to you and Teddy.
