aneux
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thanks for the reply, lainy. the doctor (the g.i. doing his ercp) says the klatskin tumor (he has others, including the main huge intrahepatic one) is kind of eating away at the wall of the duct, i guess, because he said it would show on the fluoroscopy as the contrast escaping out into the abdomen, and would not be good at all. howard was diagnosed nov. 2008, and we have had at least 2 second opinions that i can recall. we’ve also been to virginia to do photo-dynamic therapy with dr. kahaleh. and he’s been on gemcitabine since the very beginning. i think he may be hitting cancer’s equivalent of a patch of ice. i should know more shortly, i’m just freaking out and overloaded and alone at this moment. thanks SO MUCH, your quick reply already feels like a friend sitting here with me.
darla, patty, ljg — thanks so much for your input. ljg, i am sure that howard’s doing as well as he is because he does not want to know more facts about the disease, only the solutions, and he is fighting, fighting, fighting. he’s really amazing me. i’ll tell you, cc has given us one big blessing, and that is it has turned us toward each other, and made us closer and more loving than we have ever been (next month is our 25th anniversary). i never imagined our relationship like this. it’s awesome, but bittersweet, of course. i will move on to a different forum for updates, and thanks again.
anai can’t believe it’s been december since i wrote on here. i’ve been in some kind of shock i think. we’ve been doing chemo, had some decent tumor shrinkage, but yesterday evening my husband went into excruciating pain, itching, burning hot skin, shivering, no fever, and weird stools. so today they checked him, skipped chemo, and are putting a stent in tomorrow. so i came to read on stents. i am just overwhelmed right now. i appreciate y’all very much. thanks.
Everyone, first of all, thank you thank you thank you. i appreciate so much even the fact that there is a place to come where everyone knows what you’re talking about!! what a gift. meanwhile, this is just a thank you because i’m sleepy, but i’m coming back to answer each question, comment, and to ask yet more questions… have a great night, everyone.
ana
thanks so much for the feedback. i’m thinking i should ask the doctor about what it would take for him to talk to me privately. i think he doesn’t want to freak the patient out, or lessen hope, but… anyway, i’ll check, maybe a medical power of attorney would do it.
i’ll start the search and keep reading!
wow, thanks so much for the good words. i love the library, tiapatty, and it’s right around the corner from work. i did a quick search there, like one minute, looking at the books, but i am going back more at leisure.
i’m so glad i found this place. my husband does NOT want to talk about this much at ALL. he has always been kind of a “denial” person, and for now, i think it’s helping him. i, on the other hand, feel more power by talking it all out. so i have found my niche!
thanks again.
