angelmar

sorry for short reply but energy levels very low.
Bilcap trial……………..I considered myself very fortunate to get on the chemo arm of this trial and viewed it as my ally and friend… after having 85% of liver removed for cc
I hope that you can find out more about it …it’s also on the ammf website.
All the very very best.

My sentiments exactly. You have no idea how much you’ve helped me, especially as you’re on my side of the pond!

Steve – sorry for this short email but I had 85 % liver removed, gall bladder (cancer) bile ducts, bit of small intestine, lymph nodes, portal vein excision in August 2010. Thought it was going to be simple gall bladder removal.
Found this website invaluable, and the AMMF one.
However it was the staff at Maggie’s Cancer Caring Centres who helped me stick together my mind body and soul so get to one if you can. If not, check them out online.
My husband and daughter decluttered our house, streamlined as much as they could in order to keep things as clean as easy as possible for after the op. We gave all our house plants away, did not have flowers (heard about microbes) and they made me a lot of vegetable juices after the op to help build up my strength. Meditation, mindfulness, visualisation. Canceractive for help with food. Gerry Potter’s Salvestrols.
Try and see if you are eligible for the Bilcap trial……I was on the chemo arm and had 6 months of Xeloda.
I had 1 kilo of tumour removed, positive resection margins but supported by web of prayers and positive support. My daughter read the statistics. But there is a lot of ‘don’t know’. Thoughts and prayers with youxx

Makes sense and there is still so much unknown. Any idea if this is available in Scotland? Any help on how I can be brave enough to ask if I can be tested to check there is no recurrence?