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  • in reply to: Guess I’m here for the long haul……….. #16476
    anna
    Participant

    Best wishes to You and your mother in law . You have to be strong and ready for long and determined fight . And you are not allowed to breakdown – never ! Even when things go wrong – it will go away .
    Wishes
    Anna – daughter in law of a great father in law :) .

    in reply to: Second opininions #16449
    anna
    Participant

    Even if the tumor is unresectable – there is ALWAYS hope . My father in low after two unsuccessful operations is on the chemoterapy ( here is his story http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=558 ) – and there is constant improvment :):) So try to find good surgeon , but if you won’t find – immediately look for an oncologist .
    Anna

    in reply to: Shrinkage!!! #15932
    anna
    Participant

    It’s rather irritating than painful. It looks like dilated capillaries on his face ( like blushing ) an really dry skin on hands and legs – skin is peeling off – but it’s rather cosmetic than medical problem . He also has a problem with greater sweating . Everything is bearable , and to be perfectly candid – the longer the therapy last – the better .
    You have to be tough – results will come sooner or later :):):)
    Anna

    in reply to: Shrinkage!!! #15930
    anna
    Participant

    We’ve just receive results of CT after 3 months of taking sorafenib – they are really marvelous:
    ” In comparison to the CT scan on the day of 12.05.2007 size and number of lesions in liver and size and number of increased lymph nodes ( above head of pacreas and in the area of diaphragm ) without changes . It is necessary to pay attention on weaker saturation after dosing contrast medium – regression? . Despite image of CT scan of abdominal cavity without changes . “
    My father is taking two pills of sorafenib twice a day . Despite the itching and skin irritation there is no side effects .
    Father is after two operetions and two cykles of standard chemo – cisplatinum with some admixtures . First operation in 2005 he had a resection of a tumor situated just in the center of a liver , and cisplatin sessions after .
    10.2006 after the CEA ( up to standard ) and Ca19-9 ( 79 ) checkup , he took referral for tomography and MR . Despite the suspition of bile ducts hamartoma , and fatty degeneration there were three areas of abnormal contrast intensification . First one (diameter 32mm ) was near liver vein , second one ( ~10mm) was in VII segment and third one (30mm) was situated marginal in II segment .
    After the second operation the histopatology has shown that rate of malignacy of the tumor decreased from the G3 class to G2.
    Three months after operation reccurence occured . Dad is under prof. Szczylik’s care . After the first session of Sorafenib there was a shrinkage . After two following months we are really really happy becouse of the slow death of tumor :) .
    My father is unusually , extreamly mantally and phisically strong man . And J hope we are good suppert for him .
    Best wishes
    Anna

    in reply to: Any recent experiences with Sorafenib #16379
    anna
    Participant

    My father-in-law has had a CT last sunday ( after 3 months of taking sorafenib ) . When we will have results I’ll try to tell you everything what I know . After the first month tumor shrank ( 3mm one and 2mm second )

    in reply to: Shrinkage!!! #15928
    anna
    Participant

    Stacie !
    Thank you for the contact to Sara .
    The professor who is my fother’s therapy leader has been to the ASCO meeting in Chicago – so we’ve got information at first hand . I’ll try to write something more about the therapy and precise results after consultation with doctor .
    Greetings
    Anna

    in reply to: European CC community – Please help #14940
    anna
    Participant

    My father-in-low was operated two times in Warsaw , Poland in the Public Central Teaching Hospital of Medical University of Warsaw . First time there was removed a fragment of a liver about 8x6cm . The second surgery was mixed – they cuted out one of the tumor , second and third were thermoablated ( one was just near the portal vain ) . The hospital and docs are great . My fathers doctor is m.d. Fraczek from the liver surgery and transplant medicine department .
    Best
    Anna

    in reply to: Introduction #14890
    anna
    Participant

    Jerry You’re great !!!
    Your Studebaker is beautyful !!! If I lived in the U.S I would ask you for an autograph …:) All my family , here in Poland , was struck down becouse of its class and beauty – it’s a pitty you could’t drive me in my wedding day !!!!!!
    I’can imagine that beneath your ironic style there is a lot of unpleasant experiences , but I personally admire such a people , and I want to wish you a lot of strenght , and next car in many parts around the house !!!!!
    Anna
    Special greetings from my fother-in-low ( cc since May 2005 ) – he has got similar way with live :)

    in reply to: Hi , hello ! #14838
    anna
    Participant

    Hi Jeff!
    Thank you for your answer !
    1.After the consultation between surgeons and oncologist there is a great chance for termoablation of all locations . The most difficult part will be the one near the portal vein becouse of the possibility of scald . There are no mets till now !!!
    2.I hope you wont thought that the simonton method is a kind of witch-doctor work which I wanted to advertise !!!
    Dr. Simonton is one of the most known psychoonkologist – he is internationally acclaimed oncologist, author, and speaker who is best known for his pioneering insights and research in the field of psychosocial oncology. I ‘ve read a lot about his programm – and I think it might be realy helpfull for people with cancer disease – it evolved from the concept that beliefs, feelings, attitudes and lifestyle are important factors affecting health . I really belive that people have a great power for selfhealing , but we fail to use it. I ‘ve read a lot articles and books about simonton programm – and I think it may be helpfull – this is the reason of placing the link here .
    3.Unfortunately there is no cyberknife in Poland . I’ve found gamma knife – but it’s used only in a case of brain tumors.
    4. Thank you for “the oncologist online” adress – I ‘m reading now.
    Anna :)
    Hugs

Viewing 9 posts - 1 through 9 (of 9 total)