ashley
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Hello,
I just searched for ‘haelan’ and up popped one message from 2007 with no response. I happened to be on facebook and somehow came across an article on sherman sanders from lavernia texas. supposedly his cholangio which had metasticized went into remission for 6 years and he attributes it to drinking this soy drink. Has anyone ever heard about this? The company selling the soy drink promotes the story – so that’s sort of fishy. Anyone??? Is this a fabrication?
ashley from CTHi Mary,
I’m Ashley and my 66 yr old mother was diagnosed with CC last month. I saw your posting on medicare and was wondering what you were able to find out since you last posted about it. My mother was at the Mayo earlier this month and we are now being told that once her diagnosis is labeled CC that any treatment related to CC will not be covered by medicare – is that true? They have covered pre-Mayo invoices but an official diagnosis had not yet been made. In any event, my mother has a blue cross policy also and luckily it is a full policy and not a supplemental as we are being told the supplemental just follows medicare – so if medicare doesn’t cover it the supplemental won’t either.We are waiting for BCBS to have a medical review board look at my mom’s clinical notes to see if they will cover treatment. We’re crossing our fingers we are covered – but what about people who only have medicare?? I guess I am confused because there are a few postings on here that discuss medicare covering treatments so I am very confused – and this is just the beginning…
Elaine and Gary,
Ironically, Dr Kennedy from CAry, NC was one of the wonderful doctors who I emailed and sent scans and records. he responded quickly about the possibility of mircrospheres for my mother. I did not try MD Anderson, but about half of my emails were returned that the docs would review records and a few ( Duke, for example) said they would have to see her as a patient. Have you tried Mayo at Jacksonville? Just trying to think of a place near your home. I’ll be very interested to hear your results with microspheres.Karen,
What about microspheres? Another discussion board member told me about it. Dr. Andrew Kennedy in Cary, North Carolina. It was going to be my 67 year old mother’s next plan of action for her CC diagnosis last month. However- good news at the Mayo last week as we learned they are going to consider her for transplant. This is a roller coaster but you always need to have Plan B, C, D waiting to go. I’m not sure about insurance for any of the ‘sphere’ treatment. However, I asked the transplant surgeon at the Mayo about microspheres added into the protocol and she said no, but that it was a good (not a cure) option should the transplant not come to fruition for my mother.
