chris-john-joey

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  • chris-john-joey
    Participant

    Thank you all so much! Your words are comforting and meaningful. Joey will be an everyday reminder of our love and commitment for each other. Joey is the perfect blend of us both, and brings me the joy I need every day.

    Thanks again, Christine

    in reply to: confused husband #23942
    chris-john-joey
    Participant

    Hi Dave,

    I too am confused, mad, frustrated, angry, sad and distraught by this thing. Two years ago, my husband beat NH Lymphoma. Then in June, two days before our first son was born, he was diagnosed with this. We were told he would not live to see Christmas. His new oncologist said that if we can stay agressive, then we can add at least a year to his life. But as we have recently found out, the chemo has dreadful side effects. He is loosing his fingernails, can not eat (due to ascites that must be drained every 5 days), has dropped 20 pounds and didn’t have 20 to spare.

    Basically, this sucks. You guys are sure to go through all sorts of emotions every day and they can be draining. It’s ok to be mad, and it’s equally ok to be happy. Have a since of humor, we prefer sarcasim. Staying positive is very important. And the biggest suggestion I can make, communicate with each other!

    This next suggestion might be hard to swallow, but talk with your wife about her wishes for after her passing. My husband and I have a lot of plans set already. Whether he passes in a few months or a few years, he is comforted in knowing I am taken care of and that his wishes will be met.

    Cancer sucks, Christine.

    in reply to: Ascites #22233
    chris-john-joey
    Participant

    Maryanne,

    My husband, John, has ascites also. He gets drained every 5 days and they pull anywhere between 3 – 7 liters each time. Today’s draining was 6.75 liters. He always feels much better for at least 3 days, then on the 4th day he must take hydrocodone for the ‘discomfort’. His ascites started 4 days after his liver biopsy, although the doctor says that is just a coincidence.

    Initially, the fluid was draining out of the hole where the biopsy was, then that healed up and now he has the paracentisis. No one can tell us if it will stop, that is the most frustrating part. John says if we can get it to stop, then he can start to gain weight and go back to work. He is so weak from both chemo and paracentisys, he can’t stay sitting up for more than an hour.

    He’s only 39 and this is his second bout with cancer, first one was in 2006, Non-Hodgkins Lymphoma, he’s still in remission for it, ironically enough.

    Best wishes to you!

    in reply to: new to this all #22638
    chris-john-joey
    Participant

    I am new here. My husband was officially diagnosed with CC the day before our son was born, June 8th, 2008. On the down side, an internal medical doctor told us he had 3-6 months to live, not an oncologist. When we finally got out of the hospital, we were able to get to our oncologist at Big Baylor in Dallas who was mad that my husband was given such grave news without more testing from him. CA19-9 was at 48203 in early July, today his number is 10161. Our oncologist is very pleased and sees at the very least another year or two. Chemo is taxotere & cisplatin (I think) every week. My husband also has ascites, which is drained every 5 days. Ascites only started after a liver biopsy in early May, doctor says this is just a coincidence, but I don’t think so. My husband is very weak and has not been able to return to work since late May.

    Does the acsites ever go away?

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