dmiller5840

So I had my second round of radiation on February 9. It was as bad as the first one. Went up through the femoral artery and shot those beads into my liver. I was Sick Sick Sick. Ended up in the emergency room after 5 hours of vomiting and pain so bad I couldn’t stand it. Did not eat for days afterward. COuldn’t keep anything down and had no appetite. Now several weeks later I am feeling better and on the mend but absolutely exhausted. Need a nap by 6:00 p.m. so I can stay away till 9:00 p.m. I go for my scan on March 16 and Doctor on March 19 for the results. Praying that it killed off this monster totally or shrunk it to nothing. Thank you all for the support. P.S. Just finished reading 100 Questions and Answers about Biliary Cancer. What a great book. I recommend this to anyone who is dealing with this themselves or with a family member.

I received what I felt was good news from the radiologist on Tuesday. The tumor has responded well to the chemo and has shrunk for the second time so it is time to move on and do embolization radiation. I am gong to have a CT Scan, shunt study then mapping of my veins,/arteries on Friday. I will go back on January 9 or sooner for the Emolization Radiation and maybe a second if necessary I am happy that I am getting a break from the chemo. After I am done with the radiaton I will go back for either a PET or CT Scan to see how well it worked. The radiaologist said that since it has not continued to grow, if the radiation works really well in killing off more or most of the cancer cells there shouldn’t be any reason why I shouldn’t be able to go back to the surgeon maybe in a couple months for resectioning of my liver and be able to live a long and healthy life.

Hopefully everything will go well and see what the next couple months bring. Thank you all for your responses. I love this message board and being able to share everyone’s experiences. it has really helped me alot.

Thank you all for the posts and the information you have all provided.

I know it probably isn’t but I almost feel like my case is so strange because originally I was told that it was cancer of the gallbladder that had spread to the liver and I think that is why they were just going to do surgery to remove the gallbladder and two section of my liver. Then some more tests later it was found that it wasn’t my gallbladder it was the liver and then of course no it ws CC after I had the biopsy.

I found a wonderful surgeon who is a Hepatopancreaticobiliary surgeon who specializes in liver disorders, tumors bile duct and complex GI. Dr. Cohen then brought my case before the tumor board and they felt the best course of treatment was to start the chemo immediatly since I had already wasted weeks getting all different type of scans and that was because one of the scans originally showed a spot on my bones and also they were concerned about something that showed up in the uterine/ovary area. Thank god after further test they found that the CC was a primary tumor and all else was clear.

I am currently being treated at Florida Cancer Specialist at the Good Samaritan Hospital in Palm Beach County, FL After reading some of the posts I guess maybe I should ask the oncologist if they are treating anyone else with the same type of cancer.

it wasn’t until my last visit with the Oncologist that I actually asked what stage I was at and he said well a 4. I know it is in my Bile duct and spread to the liver but it has not gone anywhere else such as other organs or the lymph nodes.

This is my first scan since starting chemo. I have done 6 rounds of two weeks on one week off.

I find that I am learning every day and reading everyone’s posts has been very informative. Thank you all and hugs to everyone.