fantastic4

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Viewing 13 posts - 1 through 13 (of 13 total)
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  • April 17, 2014 at 4:14 am in reply to: lung metastasis #81562
    fantastic4
    Member

    I had lung metastasis at time of diagnosis, as well.

    January 10, 2014 at 1:25 pm in reply to: Karen passed to heaven today #78480
    fantastic4
    Member

    My thoughts and prayers are with you, Gail

    January 7, 2014 at 6:43 am in reply to: Quick Update #78399
    fantastic4
    Member

    Thanks much guys! Yes, I have had 7 different opinions from many leading health care centers. I am now going on my 4th regimen of chemo as surgery and/or radiation are not options. All of these regimens were the same recommendations by AtlantiCare, Fox Chase, U of Penn, and Thomas Jefferson.
    Thanks for your thoughts and prayers!

    January 7, 2014 at 6:19 am in reply to: My Beautiful Angel, My Mother<3 #78341
    fantastic4
    Member

    Milena
    You are an incredible woman and I am very sorry for your loss. I wanted to thank you for your last post and I’m sure it must have been very difficult for you to write. It really meant so much to me as I am a 45 yo father of 4. It is very difficult for a parent to determine what to say to their children, when to say it, and in how much detail. My kids ages range from 9 to 15 and I don’t give each child the same amount of details. I agonize over this on a daily basis and truly appreciate your input.
    Thank you so much for sharing with us!
    Bj

    January 7, 2014 at 6:07 am in reply to: Survival…Please tell us your latest milestone #64692
    fantastic4
    Member

    Very happy for you both!! :)

    December 4, 2013 at 4:08 am in reply to: Mom’s prognosis #77523
    fantastic4
    Member

    Hi Stacie. I am very sorry to hear what you and your mom are going through. You have a tremendous amount of support within this organization and we are glad you are with us. I am also on 5-FU plus leucovorin with a 3 rd agent added called Tarceva. Is this what the Dr is suggesting to add to your mom’s regimen? If so, I would be happy to share my experience with it as I have been on it since September.
    Bj

    October 18, 2013 at 10:36 pm in reply to: Missing Good News X 2 #76684
    fantastic4
    Member

    Phenomenal!!!
    Very happy for you guys!

    October 10, 2013 at 2:06 pm in reply to: Recently Diagnosed #76341
    fantastic4
    Member

    Thanks so much Kris!!

    October 9, 2013 at 5:33 pm in reply to: Recently Diagnosed #76339
    fantastic4
    Member

    Hi Kris
    Thanks so much for the info. I am otherwise healthy and now that I haven’t been on GEMOX for a few weeks am feeling much better ( also experienced severe SEs). I am interested in the trial you are in and when I followed your link I got a journal article on adjuvant chemotherapy. Any chance you can point me to the details of the trial such as enrollment, inclusion/exclusion criteria, etc.? I’m not having much look with clinicaltrials.gov due to govt shutdown.
    Thanks again!
    Bj

    October 9, 2013 at 3:14 am in reply to: Recently Diagnosed #76335
    fantastic4
    Member

    Thanks so much for the rapid responses! I will be sure to update all on my progress and future therapies.

    October 9, 2013 at 1:54 am in reply to: On the whole, I’ve had better weeks #76344
    fantastic4
    Member

    I also had the itchies that drove me nuts! Cholestyramine (Questran) helped a little. Works by binding to the bilirubin and preventing it from depositing in your skin. Benadryl also works for some.
    Bj

    October 9, 2013 at 1:36 am in reply to: On the whole, I’ve had better weeks #76342
    fantastic4
    Member

    Hi Lisa
    Sorry you joined this site as well:). Best of luck with your diagnosis and am praying it is localized and resectable for you!
    BJ

    October 9, 2013 at 1:32 am in reply to: Recently Diagnosed #76331
    fantastic4
    Member

    Hi Lisa
    Sorry you joined this site as well:). Best of luck with your diagnosis and am praying it is localized and resectable for you!

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Viewing 13 posts - 1 through 13 (of 13 total)