Findacure
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Thanks Ktoram,
I am happy things went so smoothly for you and that you are doing well.
My husband had an MRCP on Monday and we are waiting for the plan. He had been radiated in that area 27 years ago for a different cancer, so things are very fragile and immobile in that area due to the radiation. He had an ERCP last spring when we were trying to figure out what’s going on with his increased liver numbers and it was a tough procedure.
It’s good to hear positive feedback. Hopefully we hear the plan soon.
Christine
Hello,
My husband is just over one year out from SBRT for a non-resectable CC tumor around his billiary tree/liver segment 5. He’s been clear until his most recent PET last week. His liver values are climbing quickly, bilirubin being one of them. His last lab on Friday his bili was 5.1. He’s showing the typical signs of bile duct stenosis/occlusion; jaundice, pale stools, fatigue, dark urine, itching… He is scheduled for an MRCP on Tuesday. I’m keeping a close eye on him in case we need to go into Brigham’s in Boston (where his team is) earlier than Tuesday. I’m very much considering going in later today/early tomorrow, I’m uneasy waiting… I don’t want him getting septic, he doesn’t need that!
I’m curious if anyone has had the experience of getting a stent placed via ERCP? I’m an operating room nurse and have seen similar procedures (not this particular one), but I’m in the caregiver/wife role now and it’s been difficult digesting the fact that his CC has returned (54yo). I’m so worried about his prognosis now, stents are not without their own set of complications, and hoping they can do a stent then possibly get SBRT once again to halt tumor growth.
Anyone’s experience would be helpful. Thanks in advance, Christine
We actually see his liver oncologist later today to review the liver results from his PET. His recent PET scan showed 3 nodes that lit up, “not very brightly” per his mesothelioma docs, but we are going forward with an EBUS procedure to get some tissue. If it’s inflammation, we can sleep better; and if it’s metastasis, he’ll be able to get a jump start on treatment. Looking at the PET, I could see a big “hole” where the cholangiocarcinoma once was, I think the SBRT obliterated it! (but that’s just the nurse in me reading it 😉 ) We are keeping our fingers crossed…
Have a good day, Christine
Hi Hannah,
What wonderful news!!! Enjoy this happiness, what a long and twisty road this is… I’m cheering from afar.
Christine
Hi Hannah,
Thank you for your kind words and positive vibes!
Yes, they are hoping they have “zapped” his liver tumor. 6 months out from the SBRT, they said things can still be settling down from the radiation, I think we’ll get an even better determination on how the treatment worked at the next imaging in August.
I hope your mother is recovering well from her major surgery. Sending healing thoughts and prayers.
Christine
