Flb57

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  • in reply to: Frank Fighting CC #98222
    Flb57
    Spectator

    Hello.   Thanks for the comments. Went back to chemo yesterday the 25th so we’ll see how it goes. I was on the gabapentin but a very small dosage. My Dr. has upped my dosage considerably. Also I had an appt. with a genoligist but had to cancel because one of our wonderful Minn. snowstorms.  I am rescheduled  for  next week.  Also thanks for the links on neuropathy I will look into that. Guess that’s it for now will check in again with any new info.  Good luck to all battling this lousy disease.

    in reply to: Frank Fighting CC #98195
    Flb57
    Spectator

    Hello

    Took a bit to get back have not been feeling real well.

    In February 2018, I was diagnosed with what the doctors initially thought, was adenocarcinoma, possibly originating in the bile ducts of the liver.  The liver enzymes were elevated and the CA-19 was at 548.  The plan at the time, was to start Fluorouracil, Oxaliplatin and Leucovorin in March 2018.  At the same time, it was discovered that the tumor had spread to my left leg/hip area.  On May 1st, chemo was stopped in order for me to have my hip pinned and rod inserted into the left femur.  After rehab, chemo resumed until the end of August.  By this time, the liver enzymes were normal, CA-19 was at 54.  It was determined sometime during the summer, it wasn’t adenocarcinoma that I had but was CC.  I was feeling great, almost to the point of returning to work until mid-December when I began experiencing pain in my left hip.  A CT scan revealed that the cancer was growing, not only in my left hip joint but now in my right.  But the good news if any, the liver was doing well.  The next plan of action was to undergo radiation to see if that would help knock this down some.  After 10 rounds, a scan revealed that the cancer hadn’t spread but hadn’t shrunk the tumors either.

    As of February 12, I began a new chemo treatment of Cisplatin and Gemcitabine which has increased the neuropathy pain in my feet.  After 1 treatment, it was decided to wait a week before resuming treatment, to see if there was any relief.   On Monday the 25th, we will try again chemotherapy again.

    By the way, I am 62.

     

     

     

     

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