gale918
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Judy: Thank you sooooooo much. I found out I have bone spurs on my vertebre in my neck.. no wonder it causes pain. It’s soooooooo good to chat with someone with another resection. In reading most of the postings on this website, most doctors won’t operation. I had a feeling my operation was rare. Did they find CC again? WOW, two resections!!! My admiration goes to you. I too had fitness in my daily life. I walk when I can. When was your operations? My abdomen is L-shaped also. The day of my operation I took off my estrogen patch after being on them for 12 years. I found that if I watch what I eat and keep the stress down, the hot flashes and night sweats subside. I really wanted to know about energy levels in other. THANK YOU, THANK YOU for confirming it. I loved aerobics also. The owner of the fitness business has been in touch but had to tell her I just can’t anymore. Judy, it has been so wonderful to get your posting. Let’s keep in touch. Gale.
Thanks for your input. Has anyone had problems with scar tissue? Resections come with a very large incision. I’ve had pain back in May and it never really got addressed, except that the possibility of scar tissue grew to the point that it needed room and my insides had to “shift” to make room for the tissue. The pain went away. The doc did find a small hernia. I’m on Ecotrin a day due to the IVC replacement. Will I ever get my energy back? It’s been 1 1/2 years since my resection and I’ve made peace with the fact that my energy will not return to the way it was before. I don’t like being tired. The stress of it goes to between my shoulders and neck and causes headaches. Sorry to moan, I’m tired of being in pain around my neck and I have no energy.
I’m from New Hampshire and I had my second opinion with a Dr. Jenkins. Is he from the Leahy Clinic in Burlington MA? If so, he is considered top-notch and people value his opinion. For myself, I had my liver resection at DHMC with Dr. Barth and Dr. Axelrod. It’s tough when you get two different opinions. My personal experience at DHMC was absolutely wonderful but it sounds like we have different diagnosises. Your decision is a difficult one. Norris Cotton Cancer Center is in the top 50 as the best. You are very fortunate to have the best doctors.
I had a liver resection after being diagnosed with CC. It’s been over one year and my energy has decreased and I’ve accepted that fact. Did she have a liver resection? I can only share my experience. Being tired is the number one complaint. The doctor did detect one small hernia in the area of my incision. In May, I experienced swelling of my feet, small veins started showing up around my ankles. My feet turn purple if I leave them to hang (like over the end of an exam table at the docs). I was not given any definite answers, except it ‘could probably” be scar tissue that caused the hernia, and poor circulation could have come from the fact I was in the hospital for one month and my hands and feet were extremely cold – where the doctors said that all my energy/blood supply was earmarked to regrowing my liver. I found putting the light compression hosiery helps my feet. I’m 58. I don’t know if age would make any difference. I bruise easily because I’m on an asperin a day. Is your Mom taking an asperin a day. I originally took 325mg, which make me bruise very easily, now I’m on 81mg a day and I still bruise but not as bad. I’ll check in later.
I’ll be happy to write a letter. How would you like it delivered? Email, through this website, mail? Who do I addres it to? CC is a devastating diagnosis. No one should be sick with a name you can’t even pronounce! There is not much out there and no one to share with, as you know. Let me know.
I’ve read your story and the responses. Sounds like you are not getting your questions answered. Does Mom keep this disease to herself? CC is a rare cancer and I found it hard to comprehend but I do know that cancer needs to be verbal to family members – everything. Being far away for your Mom plays a part also. After my operation, I was unable to physically communite, talk. It just made me very, very tired and I slept ALOT!! I hope someone at the household is able to convey information to you and others, because this type of operation just sucks the life out of ya. Chat later.
My tumor invaded the IVC and I did have a resection. The operation took 8 hours and they removed three inches of the IVC and replaced it with synthetic material. I now take Ecotrin once a day. The asperin is a blood thinner and I do bruise easy. After one year, I’m back to work full time. I exercise and I agree with Kristin, it keeps the blood flowing and it’s good for the heart. If you have any questions, just ask. My operation was done in New Hampshire and the liver surgeon, at first, said no but he consulted with the Director of Transplants and it took one month to coordinate the operation but I had the liver surgeon, the Director of Transplants and a vascular surgeon to remove the 9 inch tumor. They removed 70% of my liver. You need to be your own advocate! Chat later.
Call your insurance company!!! ASAP!! Some insurance companies have nurse case managment. When I went through my ordeal, I was assigned one of these nurses at my insurance company and I had DIRECT ACCESS to the insurance company through her. What we are going through is a VERY BIG DEAL. I found my nurse at the insurance company helpful.
I will switch to Advil. Maybe that’s why I’ve been feeling lousy due to taking Tylenol. I took tylenol while recovering but now that the liver is grown back, I’ll switch to Advil. Thanks.
I’ve had lower abdomen pain. It’s been a year since my resection and it sounds like I’m older than you (56). I’ve had a hysterectomy, so my pain is not female organ related but the docs here have no idea what causes my pain. It feels like cramps. One doctor did say it “could be” displaced pain. My resection had to sever many nerves and I have no feeling in my upper abdomen. When pushing on my upper abdomen, I experienced pain in my lower abdomen. I’m just saying what is happening to me. Were nerves severed in your resection? I wanted to share.
