Getwellsoon

Forum Replies Created

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • in reply to: meds not working on my sister anymore #99997
    Getwellsoon
    Participant

    Hi bglass

    hope all is well.
    thank you for your informative respond.
    they suggest to stop meds all together since they say meds are not working on her.
    But I have a feeling that she will be alright, and she will have her own miracle survivor story to talk about.
    I hope and wish that they can find a cure for this PSC liver disease soon.
    Thanks

    in reply to: Wife newly diagnosed with PSC and CC #99055
    Getwellsoon
    Participant

    Hi Ryan

    hope all is well.

    I tried to read your private message and reply but it doesn’t let me to read or either reply to your message. Would you please resend it to me. We have similar situation. Thank you and God Bless you all.

    in reply to: Introduction / Welcome #98967
    Getwellsoon
    Participant

    Hi everyone

    My 32 years old sister got diagnosed with bile duct cancer, psc, and recently seen a lesion (bad tumor) in her liver that they could not see on ctscan or either MRI. They have seen it when they were changing her stents since her bilirubin is always very high that they can not start chemotherapy. She needs a liver transplant. But since they have seen a lesion in the liver they put her on hold. Thankfully they have burnt the 2cm bile duct cancer that has not been spread. She started having itchy hand and feet right on her due date. She was pregnant. And after few days of her delivery she turned yellow. And then they found out she has psc , and bile duct cancer. Anyway, but we have seen so many miracles on the way. Thank god for the new technology and awesome doctors. She is in UCLA hospital. I am glad that I have found this website to share put experiences and also read your experiences. Now we are just waiting on their decision for the liver tumor. I am sure everything will be fine soon. It just takes a long time. It is a long journey but fixable.

Viewing 3 posts - 1 through 3 (of 3 total)