h-tze
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Hi everyone, just an update, the hospital accept to my wife request on starting chemo with Gem and Xeloda, 2weeks on 1 week off for 6 cycle, not sure is that good or not but we gonna try anyway.
Hi all, sorry for the late reply, my wife is getting better and recovery in this month after the surgery, she did the brain radiotherapy with the “tomo therapy” machine, 13 shoots in total.
She don’t have much problem with this treatment, no headache, didn’t drop appetite, only loss all her hair and feel tired after each treatment,.
Now we still deciding should she do the chemotherapy or not (the private Dr. Suggested my wife to have gem+Xeloda for maybe 6 months treatment, but the government Dr. Suggested we don’t do any chemo unless we found other place got cancer.
Any suggestion?Hi, my wife do get those red spots with Xeloda.. they will turn to black colour later on (I think that’s around 2nd 14days cycle)… yes both hands and feet… Dr said those spots will fade out after treatment stop.
Hi Stan, My wife just finished 25 radiation treatments (IMRT) with Xeloda 2 14days on and 7 days off in between 3 weeks ago.
she had severe fatigue during the whole treatment,
After 5th shot of RT, her skin start getting dry and itch, but she was fine after using Radia Gel.
And at around 18th shot of RT she start having problem with stomach pain. so u better do as “wallsm1” suggest!!! my wife barely made it through… and now still taking medicine for that…
She will be doing another 2 or 3 set of Chemo (Xeloda+oxaliplatin) 3 weeks a set. DR. told us on last visit saying 2 set might be enough… anyone can tell me should I stick with 3 set or just do as Dr. said 2 set???
Thanks Lainy and Purcy, ill keep that in mind about those pre-med this time. we will go to see the Dr. tomorrow morning about her stomach problem, hope the Dr. can fix that problem and she can start eating again soon…
1 question is can this holiday before the next 3 cycles be a bit longer (its only 5 days in between)?? I really want her to get the stomach problem fixed before she start another set.
Hi everyone, just a little update about my wife.
She finally finished her 1 set of treatment: 25 shots of IMRT and two 14 days Xeloda.Her stomach pain seems to be a big problem now… she cannot eat much, and she throw up right after, her pain seems to be non stop for whole day.
she start losing faith and self confidence, she don’t want to meet people, and scare to look at people into their eyes, she admit that she don’t want people knows she got the sickness… she even cry to me and saying she don’t want to do the next set of chemo.
Somehow I did have a thought of letting her to choose, but l calm her down and ask her to wait till the next Dr. meeting then we will decide by then
Hi Lainy, Thanks for your concern, im good, although I loss some weight and really tired, but still I think it worth it… new apt is good.. just need to spend almost 1 week for clean up and fixing things be4 I move in, the previous tenant really don’t know whats called cleaning… the kitchen is really a mess… those grease on the cupboard and exhaust fan are dripping oil… the washroom is like walking in to dark room.. so I have to change those lighting as well… becoz the owner is my relative that’s why I got a special discount rent and I willing to those cleaning and fixing. My wife is really happy with what I’ve done, and that’s what matter.
Hi Susie, yes my wife start having the problem Monday, so today I ask the Dr. she said the dosage did gain a bid this week and that’s why she got the problem, she ask my wife to take Gaviscon and Pantoloc 40mg, and my wife really did felt much better tonight.
hi everyone.. i’m back.. its been a real tired week for me as I need to move apartment all by myself, plus I need to take my wife to hospital for RT everyday. Really got no idea why we got some many things for 2 person, it took me 1 week to unpack everything.
Well, day 19 for IMRT (5 days a week) and day 16 for Xeloda (14days on and 9 day off due to blood report delay) She seems ok with the treatment.
RT: skin problem gone after using radiagel, pain problem is ok after she took Arcoxia, but she start having stomach pain the last 3 days, but after she ate something she felt better, but still should call the doctor tomorrow and ask.
Chemo: Fatigue.. need to sleep in the afternoon for 2 hours at least. Nausea… but didn’t throw up after she took that ondansetron.
she did a blood test after 14days of chemo, the result seems pretty good, PLT drop from 235 to 156 but still ok to keep going with Chemo…
Dr. also expect she can go on with the adjuvant therapy after finish this set with 1 week holiday. Which planned on Aug 5. shes planning to use Oxaliplatin (Eloxatin) plus Xeloda, 3week for a set and total of 3 sets.
Hi Pam, Thanks for sharing your feeling, I know its hard for you and your family at this moment, but time will heal, consider that’s a release for Lauren, and she went to a better place and a place that she don’t have pain.
Love and Hugs
HughYes since the 1st day my wife diagnosis, I already got the same feeling about money is not the point anymore.. but just to point out that there are people out there give no mercy, they will try to rip u off no matter what… some even will sell fake drugs or Vitamin saying it will cure cancer…
sorry for the late reply.. thanks Lainy and PCL for your advice.
we went to see the doctor on the 2nd July for check up and mainly due to lack of “ondansetron”, the time we pick up the Xeloda Dr. gave her 6 tablets just in case, but then on the 30th June, she run out. and the 1st July is HK holiday and she really needs it, so I went to a local drug store and found 1 box of 10 tablets by gsk. anyone knows how much will that be??? (answer at the end)
Also she felt some pain around the surgery area, which she don’t have be4 the treatment, and end up the Dr. said that’s from the Liver, but that normal from the IMRT???
So this time the Dr. gave her 30 Tablets Apo-Dimenhydrinate and 10 tablets of Ondansetronfor the nausea, 60 tablets combizym for the lost of appetite, then 14 tablets Arcoxia for the pain, and with the consultation fee total $165 USD.
Seems like she felt much better for the passed 2 days….
now 1 box of GSK Ondansetron 10 tablets from local drug store… $205 USD!!!!
I feel like Im a stupid now…
hi everyone..
sorry for late update, been busy with taking my wife to hospital everyday for the IMRT and start packing for moving… yes we moving next week to another apartment (that’s becoz of Chinese thing called “Fung Shui”) and hope that will help my wife recovery
well Day 6 today, no need the IMRT just Xeloda for today and tomorrow.
She felt nausea and headache from day 1 after taking the Xeloda.. so start from day 3 she took Zolman and that help a bid.
She usually have that IMRT around 5-6pm and seems like everytime she get on the car after that she fall asleep. other than that she felt pain again at where she did surgery. But the Dr. said that’s normal and ask us to keep on going until the next Friday for reassessment.
She sure loss appetite since the surgery, and now even worst. she only can eat 1/3 of what she can be4 surgery, and her weight drop to 100lbs, ive already force her to drink “Supportan” between meals so that her weight can hold above 100lbs.
I really worry that can she make it through this 5 weeks treatment.
Hi Terri and Dylan, welcome to the group.. I’m new here as well.. sorry we have to meet here.. I don’t have much information can share since I’m still learning as well… but I can share my personal feeling as a patient’s husband.
Somehow I think that’s our destiny that my wife got this type of cancer.. (that’s totally change our point of view in life and life style) and we cannot do anything to change that.. so we decided to do whatever the doctor said; surgery, chemo, RT… try our best to cure, to lower the chance of recurrence, and to make her life last as long as she could….
And on the other hand, we live everyday as the last day. tell her jokes.. make her meals (I never walk into the kitchen be4 she got this cancer)… take her for walks.. comfort her in anyway…
I still think that we are luckier than those who got in accident and never get the chance to did say or do what they want to their love ones be4 they gone… we do have the time and chance! Although it might be tough on this journey…
BTW whats Y90??
