helent
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Hi Serena
I had my resection in November 2010, and I experienced some strange aches and pains for about 2 years afterwards, although they did lessen over time. For me, it felt like I had heavy stones around the area of the incision, and it was very uncomfortable at times. I’ discussed this with my GP and it was felt to be part of the healing process, and probably some adhesions .
I still have occasional twinges but it has become my new “normal” and I don’t worry about it anymore – but your Mum will have to find her own peace with this!
Helen
Dear Borlandn
I am one of the Uk members, and I have to say a very infrequent poster, although I still read posts regularly. I am nearly four years post resection for a klatskin tumour and counting myself so lucky!I think you should consider a second opinion, and ideally this should be at one of the centres in the UK that specialise in CC – visit the AMMF website where Helen Morement has collected some really great information on CC, including the specialist hospitals.
http://www.ammf.org.uk/cholangiocarcinoma/specialist-treatment-centres/
Read everything you can, ask every question of everyone – knowledge is power with CC!
Best of luck
Helen
Hi Neil – welcome to our family. Great to read your blog about your whipple op – it is both entertaining and a good reference for anyone else needing the same. I had a resection for perhilar cc in November 2010 in Plymouth – as Gavin says there are quite a few UK members on this site!
Could I also recommend AMMF as a great resource in the UK – good factual information and an amazing charity providing funding for very vital research into cc.
Their website is http://Www.ammf.org.uk
Hope things continue to go well for you.
Helen
Hi Jim
Just a quick post to say hallo. I too am in the UK (Devon) and was diagnosed with CC in October 2010. I was lucky enough to be eligible for resection, which was done in my regional specialist centre in Plymouth.I really cannot add anything to what Helen Morement has said about treatment for CC in the UK – I think it can be frustrating at times, and you really do have to fight your own battles sometimes ( or have someone great to fight them for you). AMMF is a wonderful source of information and inspiration for me and many others in our CC family.
I can really associate with your list – it reads much like the one I have carried in my head for the last 2.5 years. Keep working at it…..
Good luck
Helen
