honeez1

Thank you everyone for your kind words of support, prayers & well wishes. Dad is set up at home we met with Hospice nurse yesterday who went over all his meds & needs & he seems to be in a good place both physically & mentally. I’m not fooling myself, as I know he won’t be this good for long but trying to spend as much time together reliving memories etc. I think the hardest day was him having to talk with my 16 yr old son whom he has a special bond with. My son Jake knows he’s terminal as does the whole family but dad insists on talking to all the grand kids separately & having his one on one time with everyone. Being a 16 yr old boy with hormones is hard enough but witnessing him breakdown was so sad. I’m now having to look forward to my daughter who is in college out of state & coming home Friday for spring break. Last she saw her “Papa” was Christmas when he was healthy with maybe a case of shingles. She has missed out on all the hospital excursions, chemo/ radiation etc so for her it’s going to be difficult to come home & see a totally different person (not to mention 35 lbs lighter) She is only home for a week than must fly back to school so most likely this will be her last visit with him…My oldest son is in the process of applying to medical schools trying to follow in the footsteps of his papa & while he knows he won’t be around to see him graduate his hope was that he would still be here for his “White coat ceremony”…. Alas it doesn’t look that will happen either Well here I go rambling on again, just so many thoughts & feelings going in a million different directions UGH!!!!!!!

So we met with oncologist GI specialist & radiologist. The best scenario for dad would have been a liver transplant but he is not a candidate for that due to the mets on his T-1 and in his lungs. The cancer in his bile ducts is also very high up & evidently hard to access . He is staged 4 at this point. They want to continue the radiation on the tumor in the t-1. He has had 5 treatments & will receive 6 more. He then will see the oncologist in about 3 weeks where they will administer a cocktail of 2 different chemosynthesis via IV then the following week administer just one of the chemo then evaluate the following week after that to see how he’s reacting. The good news is that he may be able to come home from hospital now that his infection seems under control. They are waiting on doing the other stent procedure until really necessary sine his labs are looking much better….bilirubin now down to 2.6 from 3.3 yesterday & liver labs way lower than when he came into hospital on jan 23. White blood cell count lower too There’s some cracks of light at the end of this tunnel!!