jdow
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Hi all!
My brother in law had his 1st scan since starting this trial – phenomenal results! BIL had four small tumors to start, all below 2.0cm (he had a resection and ablation prior to starting the trial) the two tumors that they marked to follow went from 1.2cmX1.2 to GONE and 1cm to .6x.5. Of other two smaller tumors, one is GONE completely and one is 0.3x.0.2 AND, the best news . . .no new tumors!!!!
His main complaint of the medication was salty taste to water, occasional lack of ability to taste food and high levels of phosphates. This medication has far fewer side effects thus far to chemo. We are so excited that this trial is working, we pray it continues to work and we see no new evidence of this horrible disease.
Prayers to all families and individuals effected by cholangiocarcinoma.
Vedic,
How are things going? My brother in law is starting this trial on Thursday. He has four very small lesions, we are hoping they go away completely. He has had a resection and a few ablations. From our understanding this trial is a dream compared to Chemo, would you agree?
Thanks – hoping you are responding well and feeling healthy!
Jill
Have you heard of this clinical trial? It focuses on patient with the FGFR mutation. https://clinicaltrials.gov/ct2/show/NCT02924376?term=fgfr&cond=Cholangiocarcinoma&rank=1
My brother in law was just accepted into the trial.
This board has been invaluable in providing a knowledge base and understanding of this horrible disease. I have spent huge blocks of time reading your posts and links – thank you for creating a comprehensive reaource and a community where it was desperately needed.
