jerry-d
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Thanks Mary for the good words. Keeping busy on other things is a large part of it. Of course those other things can be pretty stressful — but I figure that is positive stress which seems to work well for me.
I’ll e-mail you separately about the great doctor at OSU whom Wisconsin allowed to escape our state. Jerry
I was on a Phase II clinical trial for Tarceva (then known as OSI 774) from May 2002 through Nov 2003. The results were immediate. The first CT Scan showed several spots had disappeared and others had not increased. The Tarceva (one pill a day) stabilized the growth until Nov. the following year. Since this is a targeted drug (growth receptor blocker), side effects were minimal. I had upper body rash. Mild diarrhea, easily controlled by immodium, pretty significant dry eyes, and, uniquely a number of shallow but very painful ingrown toenails — which went away two weeks after I stopped treatment. It was the “easiest” chemo I’ve been on.
I was on Oxaliplatin and capecitabine from May 2004 until Oct 2005 under a clinical trial. I was taken off because the spots were almost too small to be seen, but also because my platelets began recovering so slowly so my treatments were too far apart — 7 weeks at the end. The Platelets had to be 75 for treatment. The CC started showing up in Feb 2006, and I went back on the same chemo, off study from Mar – May, 2006 — but was taken off because the drugs were no longer effective for me. Since then I’ve been on Panzem, but that didn’t work, a couple weeks ago I had a SIR Spheres treatment. Incidentialy I’ve had CC since Mar. 2001 — a couple operations and quite a few clinical chem trials.
My neuropathy is slowly getting better all the time, but it does take some time.
Jerry
