jim-wilde
Forum Replies Created
-
Posts
-
May 10, 2012: Kim joins the program by phone and talks about continuing her radiation treatments and offers listeners inspiration and support in dealing with their cancer. Denise talks with Missy Stein, the 2012 Survivor Fundraising Chair. for Komen Philadelphia Race for the Cure.
Layers of Love: Comforting Chemotherapy Patients One Blanket at a Time wrote: “We hope you will join us Thursday, May 3 at 12:30pm est when we will be the guest on Let’s Talk Cancer on WWDB-AM 860.
Thurs 4/2612 show featured Anne calling in from Ireland, David, a colon cancer patient and Kim was on board, feeling pretty poorly, from home by phone for the whole program. Kim has more courage than anyone I know! It was a very touching program.
Thursday 4/19/12 program: Kim joins the program from home and talks about preparing for her upcoming radiation treatments and offers listeners inspiration and support in dealing with their cancer. Denise is in the studio to welcome University of Pennsylvania students Ashley Brown and Alexa Guzman, Co-Chairs of Camp Kesem, a college run camp for children whose parent or guardian have cancer.
Mark, glad to hear your dad is doing well. One of the nasty things about cholangio is its proclivity to recur. Just enjoy the good time while you have it. Consider it a gift.
Kris, I’ve already shipped the disc to Abby, my dear onc. She’ll have a NYP radiologist read it.
Time to end this thread. The path report wasn’t good. The feature removed from the right lung was cc and there is micro cc in the pleural fluid around the lung. I was toying with restarting chemo, but according to my dear onc Abby, it’s typically not effective if there are no visible tumors present. She said if cc represents in either lung, Dr Sonett can just remove it again and again as needed. Just have to hope it doesn’t pop up in an inoperable place. My MD onc knew Dr Sonett when they both were at Univ of MD medical school, and he said Dr Sonett has a huge reputation. I vote to stick with overachievers every time.
Oh, BTW, the update was BY Kim, trooper that she is. She stayed on the phone for the entire program. She got a god awful haircut for the surgery to remove the mystery growth. Not sure what it is yet. Samples will be sent to Columbia after the local NJ pathologist finishes, but this is clearly a strange one. None of my doctors at NY Presbyterian have seen cc met to the skull, so it appears this may be totally unrelated. It was growing so fast that it presented a short term stroke risk, which is why Kim decided to have it done Tues, instead of just a biopsy then. I talked to her at length Thursday, and other than some cosmetic issues, she’s doing fine.
This weeks topic: dental and oral health care needs of individuals battling various forms cancer at all stages, March 29 @ 12:30 PM. Threre will be an update on Kim, who had surgery yesterday, also.
Jeff, there’s a board section here called “Surgery, Resection & Transplant Treatment Options“
Discussions involving the various surgical techniques.
I’m not sure how a Whipple may differ from a resection, which I’ve had, but there’s lots of both around here. No need to feel alone.
Y90 can only be done 2x in a lifetime (I suspect due to toxicity). It is typically done as a palliative, rather than a cure, to extend life. There is a mapping procedure done a few weeks to a month prior to determine where the radioactive material will go. If more than a small % (I think 3%) go to other than the liver, the procedure may not be done.
Primary side effect of Y90 is fatigue, plus other more subtle ones.
I hope this answers some of the questions.
This weeks’ topic on March 22,2012 Children of parents with cancer, and a special update on Kim… be sure to tune in.
Jose, I was on Gemzar for six months, and a major effect on me was appetite loss. I had to almost force myself to eat, especially the day of infusion and the day after. Lot of smaller meals helped, along with healthy snacks.
Some years ago, following a cardiac surgery, I was given Ativan in the ICU, which caused an LSD type drug trip. They said no more of that for me!
A really good, experienced surgeon will not be surprised very often.
I generally agree with Eli and Lainy as well. If you qualify for surgery, then you have to hope for some luck as well.
