jonuk
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Like Suzanne I too have a Nintendo DS and an Archos 605 with some music and videos to watch. Seems you just get interested in something like a good movie or book and its time to go home. Our chemo room is also open so there are always people about willing to pass the time of day with you – and dont forget the staff they are a mine of information and will generally impart such if they can spare you a couple of minutes in passing.
John
Thanks Ron
WE must have been on a different tack – will check with my pension companies — although one said that as I am still able to do somesort of work ( heaven knows what ) I am not eligible for medical erm retirement . They take your money but dont want to give it back typical of insurance companies I’ve found – dont have much to do with them if I can avoid them.cheers
JohnHi Ron and Hi to you too Lainy
Thanks for the info Ron, I do get IB and high rate DLA and have just got a new car through the motability scheme, its now 3 weeks old lol. Thought I might as well have something from the State for as long as I have got Fortunately I have not lost my sense of humour – long may it remain so !!!!
I must look into the Inland Revenue part haven’t done so upto now. DPW didnt mention that at all. Get that under way asap.
Treatment seems to be going along fairly nicely but I have been dropped to a fortnightly cycle for chemo instead of 4 weekly because my platlet count drops to far for the last chemo. Another sCT scan wiwthin the next fortnight so will have to see how we go from there.
Nice to meet you all and thanks for the information.John
Marion, thank you also for your welcome to the group. I was told at my original diagnosis that the cancer is inoperable so it was palliative care for me only. The chemo seems to be doing its work at the moment will have to wait to see what happens in the coming months. The fact is I feel so well really only the extreme fatigue and breathlessness taking its toll – no nausea etc.
Thanks for your good wishes and mine to you too.
JohnHey Lisa thanks for the reply very glad to hear you are well now. I have no idea how large or small my tumour is – perhaps there are certain questions I still need to ask my doctors. Like you say the fatigue is the worst thing I feel I am suffering at the moment – perpetually tired but sleep doesn’t come easily sometimes.
