judith
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Hi again. I would like to let you know that my dear John passed away exactly 4 months after his diagnosis on 26th March. He had 3 good months then very quickly progressed after that. That last 5 days he was confined to bed with a pain relief pump. The hospice nurses were a wonderful help and support coming daily for those last 5 days. He passed very peacefully with all the family at his side.
Just if you are interested, the week before he died we had bloods tested and another CT scan just to see if his swollen abdomen had any drainable fluid. The CA19-9 tumour marker had risen to 1.8 million (it was 72,000 at the beginning). The liver was huge and covered with metastases and this caused the swelling and not any fluid or ascites.
My family and I really appreciated the 10 signs to end of life and it helped us to understand where we were on the journey. Thanks Lainey. I have also been interested in reading the messages on after-death visits.Thanks everyone for your support – to those fighting this disease My thoughts and prayers are with you.
JudithHi Nancy. Thank you for your reply. We are walking a similar path. I am thinking of you and wish you quality time with your husband. Although Johns blood tests continue to deteriorate and he is needing a higher dose of slow release oxycodone, he is comfortable and still able to do things for himself. I have taken leave from work to be with him. Keep in touch and take care.
JudithHi Juan. It must be very difficult living so far away with your dad being diagnosed with CC. Being stage one sounds like there is a lot of hope. I replied because we live on the Sunshine Coast, Qld so not too far away. My sons are possibly a similar age to you. You can read my husbands journey with my introduction story on this site. I wish you all the best for your family and your Dad as he walks this journey.
Judth
