judym
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Julie, I’ve been following your story and good news.. so glad to hear. Since you are being treated at Mayo, have you ever asked about vaccine therapy as option for cholangio? Mayo seems to be a leader in the experimental vaccine therapy area- it publicized a story last spring about the successful treatment of a woman with blood cancer with the measles vaccine.
Melinda, so very happy for you and for all that you share with us. You do inspire us. Hugs to you, Judy M
Thanks so much Marion. I was hoping we might hear something from another “early bird” at another trial site.
Do we have any information about experiences to date of this NCT02054806 Study of Pembrolizumab (MK-3475) that is working so well at the UCSF.? The clinical trial lists 20 investigative sites, Including UCSF and MD Anderson. It would be very helpful to know more..JudyM
That is wonderful news Marion and a tribute to you, Stacie, Donna and everyone else who is involved.
Thank you so much. We have not heard of an infusion nurse coming to the home, but will inquire– that would be over the weekend… What about any pre-med suggestions to make it easier on the patient? Or an overnight stay at the hospital to start?
Thanks you so much. That’s very helpful .- to try trial when strongest. Yes, he has verified mutation for eligibility. That gives us a shot.
Marion, Can you describe some examples of digestive enzymes to take when feeing discomfort after resection surgery? Do you mean particular foods or medications? Thank you.
I have the very same question and hope there will be a response among the knowledgeable readers of this site.
Dear Jason, I am so very sorry to hear of Andrea’s passing. Although I never met her, I have met you and appreciate the sharing of your expertise and energy that honors her and helps all of us us involved with this disease and the foundation.
I’ve found the 2 recent webinars very informative and appreciate them very much. Thank you for organizing them and reaching out to the physicians.
Melinda, So glad to hear that your tumors are stable and shrinking! I joined the webinar last week and found it very informative– your personal experience added so much to Dr. Tran’s excellent overview. Thanks for sharing your ongoing story. Best to you,
I have been following your story and hope that the new trial/therapy works for your dad. Also, I am wondering if you could share your reasons why USC is considered the best place to go in the southern CA or LA area– and why or how you came to choose Dr. El-Khourey.
