kathysue
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I sent my fiance, Mark’s, biopsy slides and path reports to John Hopkins for a 2nd opinion. Just received their results back. They state:
“The findings are consistent with a cholangiocarcinoma, however matastases should be excluded on clinical/radiologic grounds. Possible sites of origin include upper GI tract (including pancreas) and lung.”
So now we are confused too. Is this a possible misdiagnoses? Waiting to hear back from Mark’s oncologist regarding John Hopkins report.
His surgeon’s nurse is saying because Mark’s case is very rare (only small tumor inside the liver and not in the ducts), they are suggesting this might not be primary to the liver because it is rare for it to be where it is. Also said Mark’s surgeon “looked around” when he was inside, and the ERCP showed the pancreas to be fine, and they are certain it is Primary to the liver.
So very confused and frusterated with what to do.
KathySue
Waukesha, WII take Tri Omega III in pill form (gel) that I represent (see link below for more info)and they do have the DHA Omega 3’s. And yes, it is VERY common to belch “fish” in a good quality form. That tends to be a bummer, but keeping the product in the freezer, taking with digestive enzymes, and/or taking it before bedtime does help.
If you are interested, contact me privately for more information on how to order the TriOmega III product I represent. But definately get your father on a good quality Omega 3 product. It is so good for so many reasons!
Kathy Boyd
Waukesha, WIJust a few comments for you to consider: It is BETTER to eliminate 3-4 times per day, instead of just once. The longer “waste” products are in your body, the more chance for them to “ferment” for a better way to explain it. (Although you do mention urgency, which is not the preferred way.)
Anytime you drastically change your diet to include a lot more fiber products you can experience more elimation and/or constipation as your body adjusts to the change. I would suggest you SLOWLY increase your fruit intake, rather than a drastic change, and see how you react. I have some nutritional training, and am not a doctor, but I do know that most naturopathic doctors agree that ilimimating several times/day is definatley better.
Kathy
Milwaukee, WIThanks for all your comments. I do believe Mark is not a candidate for Transplant, however, I am not convinced that chemo does not work on this cancer (especially getting hooked up with this wesbite). Mark’s location of the cancer (inside the liver substance and not in the bile ducts) is what our docs are saying is making this different. It is also why they say he is a candidate for cryosurgery. However, I need more info, especially to decide if this surgeon is the one to do the surgery. I have learned they are doing MRI guided cryosurgery, and having better success, so if we decide to go that route, I may wany to find a place doing the MRI guided surgery. We have not actually gone to Mayo Clinic for a transplant evaluation, however, our surgeon was suggesting we go there, but offered to”call ahead and talk with specialists”. After talking with specialists at Mayo, our surgeon said Mayo said he is definately not a candidate for transplant. Here is some info on crysurgery.
Cryosurgery from livercancer.org website:
“Cryosurgery is a new technique that can destroy tumors in a variety of sites (brain, breast, kidney, prostate, liver). Cryosurgery is the destruction of abnormal tissue using sub-zero temperatures. The tumor is not removed and the destroyed cancer is left to be reabsorbed by the body. Initial results in properly selected patients with unresectable liver tumors are equivalent to those of resection.
Cryosurgery involves the placement of a stainless steel probe into the center of the tumor. Liquid nitrogen is circulated through the end of this device. A picture of the cryoprobe is shown.
The tumor and a half inch margin of normal liver are frozen to -190
