kernos
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Thanks Marion.
My oncologist is looking at getting me on trials of immunotherapy in a few months so I found it very useful.
Tony
Glad to hear chemo is going well Sandie.
Has she seen the DE since being diagnosed with cancer?
On the gem/cis chemo I was given a steroid with it and for the next 2 days, that steroid raises your base blood sugar level. Apparently a fair few diabetics go on insulin for this reason whilst on chemo.
If she is on metformin as well to help with the diabetes there are other things the DE/Endo will want her to keep an eye on also.
I hope Christmas is a good one
Tony
Lainy that sounds great
Marion yeah I did some reading when my first chemo stopped working, It’s quite amazing how they work if it wasn’t so deadly,
We are giving my body a rest from chemo over Xmas and giving SIRT a shot once things start up again.
Thanks
Tony
Latest scan results back. Old growths are getting bigger and there are new growths also. Good news is it all seems to be confined to my liver.
I see my oncologist later today, it will be interesting to see what he wants to try next,
Hi Sadie, sorry to hear your news.
I would also recommend your mother sees a Diabetic Educator and a podiatrist as well as the nutritionalist. She can see them under her diabetic care plan and probably only needs to see the DE and nutritionalist once just to get a rundown on things she can expect.
I also have Diabetes and was on the same regime as your mum. It can be harsh on the nerve endings in our extremities as can diabetes which is why I recommend the podiatrist under the care plan.
Taking care of the diabetes will also help with the cancer and it is something she is familiar with.
As for why you need to see the surgeon. I had to see one also a couple of times before I was passed on to an oncologist. Thats just how the conveyor belt works in our public system, not saying it’s bad it just seems to be the order of things. I guess because surgery is the preferred first option.
Good luck
Tony
If you are looking around for clinical trials apparently cancers of unknown origins are another category we can fall into.
Thanks for the info.
Yeah I have access to a counsellor if I want one, atm I’m happy with my team.
Strange coincidence My oncologist who was assigned to me is the same oe who has been looking after my father in law for years though different hospitals plus my GP who I trust speaks highly of my immediate team.
Thanks
Tony
Thanks Lainy and Marion
Lainy the registrar said it was a common occurrence and I did some reading up on it and those cancer cells are tricky little buggers. I’m probably putting to much importance in the tumor markers, they make it feel like I had 3 months of chemo for nothing.
Marion I’ve changed from Cisplatin to Carboplatin and still on the Gemcitabine. My oncologist warned me again about the extremities danger when I reached cycle 6 as I’m also a type 2 diabetic. My podiatrist tested for nerve damage and found a deterioration in my mid level nerves I think it was (tuning fork test) whilst still in the good range it was significant enough for them to change to head of any complications. My podiatrist will now test every 6 weeks when I see her.
As for genetic testing, I’m not sure how common that is here yet I think it is only done in one place in the country but I’m not sure. I did get accepted for a trial that involved genetic testing of my biopsy if it was still viable. The trial isn’t aimed at current patients but the chance of having the tumor genetically identified is a possibility.
The trial is very popular and the lab doing the testing is doing it free of charge so it’s low priority, my oncologist is chasing them up to see if my results are back. If they have trouble nailing my treatment down it will be an option I will pursue I think.
My main priority atm is getting my head on right, I dug myself a hole on diagnosis then climbed in and pulled the dirt on top of me like a blanket. I started digging out a few weeks ago but it’s taking time. I haven’t been looking after my diabetes or cancer and that wont help anyone.
Having here to come and vent is a big part of getting my head straight so thank you for everything.
Tony
Well the good news and bad still stands.
The oncologists aren’t sure how one can grow whilst another shrinks so they have decided to give me another 2 cycles of chemo and then redo the CT scans.
They have changed my chemo thinking I might have developed a resistant to it plus I’ve got a bit of sensitivity issue in my feet.
When I went in for chemo the next day my tumor Markers test was back, it has intense from 1100 in early September to 2540 now, that back to mid July numbers. That has just given them further belief my chemo stopped working.
Thanks for listening it’s good to have a place to vent ☺
Tony
