kris00j
Forum Replies Created
-
Posts
-
Tomorrow is the big day. 3-4 hour apt. with radiologist. I guess I get to learn what stereotactic radiation is all about. I don’t know what tomorrow is going to hold: I have no idea what they are going to do for 3-4 hours… another scan? My tats?? My mold?? I guess I will find out. No sense speculating: I have NO idea… so if you are reading this before 10:30 (or even later) on Tues. Eastern Time, send up a prayer, positive thought or whatever positive vibes you believe in…
Thanks a bunch.Tiff: watch the feet. I’ve been off Xeloda for a month now and my feet just started peeling. I got lax with the cream….. I’m pretty upset that it’s happening so long after treatment was stopped….
Watch the pedicures, too…I had the portal vein embolization when we scheduled the resection back in March. It was to give the liver a chance to grow on the “good” side. I’m still waiting for the resection…. but I was told by my surgeon that as the left side shrinks and dies off, the right side grows to accommodate. I would like to see what my liver looks like by now….
Oh I am so glad to finally hear some great news again!!!!! I am so happy for your sister and the news! Have a great summer.
Hugs,Does he eat healthy like you do?? All that organic stuff???? (If I remember correctly the answer is not really) I think there’s some foods that might help it rise, too. I know there are for proteins and RBC, so why not WBC?? I just don’t know what they might be….
I’m sorry he couldn’t get chemo. I hated when I would get all the way up there only to be told my bilirubin was too high for chemo. That was the normal problem for me, but I was on FUDR with the pump and that’s some nasty stuff.
Have you talked to his onc about him getting chemo closer to home? I mean, Princeton Medical Group is right there, and I LOVE LOVE LOVE Dr. Richard Lee. He is such a nice man, and always so happy when he gets to share good news with me. Maybe you can ask or at least have him do blood work there the day BEFORE he “schleps” up to Sloan???No walking barefoot around Lainy’s area that’s for sure. Especially for those of us with neuropathy!! Blisters?? How did I get them???
I think the 88ish around here is bad enough, but we get the humidity too. So it can be oppressive.Audrey, as of now it’s July 11. I have to call Dr. K’s office to see if she wants me up there anytime soon. If it changes I will let you know.
I know this wasn’t really necessary to post in good news, but I needed to post in good news. There’s been so much bad news lately… I can’t take much more without celebrating even a small victory.Pam:
I am so sorry to hear this news. I too hoped that the Y90 worked. But I am going to pray it’s a lesion in the liver. LESION, LESION… say it enough and God will hear you.
I told Lauren she could call me anytime. But you can, too. I’ll inbox you my number in FB.
You need to stay strong for her, so if you want to vent and cry (away from her) give me a call if you need to. I’ll cry and vent right along with you.
You know Lauren is always in my prayers. I will send extra energy her way and have a long talk with God about this…
Besides, she has to be okay for Labor Dayish when we finally get to meet!!!
Love and hugs,HAHA Lainy. I already tried that route!! First hubby was a sailor!!!
I just LOVE a man in uniform: 2nd hubby was a paramedic….. I need to break that mold……Dr. K called me on Friday personally (OH, BOY!!) to tell me she’s concerned about how long it’s taking to get into Fox Chase. I responded by telling her that if I had known I had to do all the legwork I wouldn’t have waited 2 weeks while I thought her office was doing the work…. then I would have gotten in earlier. And if she wants me in faster, I suggested she call the dr. and tell him that. Well, it’s been 3 working days and nothing. So I guess she isn’t THAT concerned!
Cathy I gave up sugar because I don’t want those lymph nodes growing any more until radiation gets going. And yes, I used chemo as an excuse to eat badly. Dr. Fong scared me last month and so I’m off MOST sugar and trying to eat healthy so I don’t get sick!!!
Tiff: AL will probably wait until after radiation now. I don’t even know when I’m starting yet. Will find out next Tues. and how long…. probably gonna try for after Labor Day because it’s just too darned hot down there right now!Tiffany:
I am so glad for your good news!! And I’m happy you are finally comfortable with your decision and not trying to second guess your treatment!!!!
Now get off that Dr. Pepper!!!!!!!!
If I can give up candy bars, you can give up Dr. Pepper.
Love ya GF,
Krisdmj:
If the Gem/Xeloda is working, why rock the boat, as you are all saying… There are so many combinations out there now. CC is different because the cell structure differs even within the same body. So if you found a chemo regimen that works, keep it up!!!
