kris00j
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Staying another night at Hotel Sloan Kettering. Breathing is still a problem. XRay showed normal “after procedure” stuff. A little bruising, a little fluid. I need to breathe my way thru the pain. But it’s hard… I feel like a knife is twisting thru my right breast every time I try to take a “deep” breath.
So one more night for evaluation.heehee Lainy.
I don’t know how he would fare at Penn Station. It’s pretty confusing, especially your first time. And to do it alone… oh, boy, I don’t know if he would make it.Pam:
I was out of it yesterday so just reading this today. My mother swears by Balneol and it worked great when my butt got so sore during chemo.
The fun part of chemo is you need the stool softeners because of the pain meds, but after chemo you need a different prescription to stop the diahrea. I hated that part.. joked about what week it was and which direction I needed to go!!
I hope she feels better soon.Grover:
What wonderful news!! Not even a resection can keep you down!
As far as eating: it will probably take a while for you to get your appetite back. I know for me it was about a month and I didn’t even have a resection yet. So for you maybe 10 days??
You ARE the superman around here!!Problem with pain management yesterday so I stayed the night at the hospital. Still in pain but nothing like last night. The main prob with this embolization is the entrance wound is at the diaphragm. So breathing is hard.
Last night the pain was jumping from 4-8. Today it’s about a 2 and I haven’t taken pain meds in over an hour.
Got up and walking to make sure it doesn’t get too painful. It’s all good right now. I want to leave mostly because my poor boyfriend is lost in the city, and I’m afraid he won’t be able to figure out how to catch a train.Rachel: I pray your son decides to start fighting again. Maybe radioembolization will work for him?
I am only 48 and am nowhere near ready to leave this earth. I was not operable when I was diagnosed March 2011. But after chemo treatments, thankfully, the tumor has shrunk enough and is no longer completely surrounding my vena cava. So my surgeon will do a resection on April 4. He will do the resection and oblate the remaining cells that he cannot remove. I pray that he gets it all, but will be watching other treatment options in case of recurrence.
If he is also in NY state, maybe he should go to Sloan Kettering or NY Presbyterian in NYC for another opinion. Dr. Kato at NY Presbyterian is a “superman” when it comes to resections. And I really like my surgeon, Dr. Fong, at Sloan Kettering.
Please tell him to keep fighting and hoping. Sometimes it’s all we have.PCL: I’ve never been to Paris, so include me in the party when they find the cure for this! I would love to see the Eiffel Tower.
Lud: It sounds like your test was a lot like the tests I had last summer to make sure my infusion pump was directly going to the tumor without too much leakage from the arteries involved. I had 3 embolizations to try to fix the leakages, with the result being a very slight leakage so y onc thought it would be safe enough for me to start receiving chemo thru the infusion pump.
Good luck with the next phase of your journey. I hope the radioembolization works womders for you and everyone else involved in this process. These advances might just help find a cure for all of us!Janet: I hope your husband gets great news from this treatment!
Kris
Thanks everyone for the good wishes and prayers. We do seem to have a lot of them going around. Sadly, my prayers have gotten VERY LONG in the past year.
PCL: Thanks for the info. I guess I should have been a little more exact. I’m having an interventional hepatic embolization. No radiation involved. But I never thought of that. I did have some radioactive isotopes pumped into me for some tests last summer. I had to carry a card in case I went anywhere where I would set off alarms. Never thought of worrying about being near my boyfriend while sleeping. I will definitely have to keep that in mind in the future.
I have a friend who received radioactive treatment (not typical radiation) and she had to live separate from her husband and his kids for something like 10 days after treatment. Thankfully they have an in-law suite.Kris
My veins did NOT like the Gemzar. They had to move the IV 2x until they found a vein big enough to handle it. And I had track marks for over a week. You could actually see the bruised vein all the way from my elbow area to my shoulder. The Gemzar was nasty painful, and I immediately scheduled to get a port! Much easier on me.
Kudos to anyone who can handle the chemo without getting a port. I wish I could have. But I’m not surprised I couldn’t do it: I had 10 IVs in the 10 days I was in the hospital last year. And the first IV lasted 3 days. One of them only lasted about 1.5 hours before it blew. I figured with that kind of track record, I wouldn’t last long with chemo. And since the “pre-port” days started, I’ve actually lost 2 veins in my arms.I hope you don’t have too long of a drive so your bladder holds up!
Kris
Suzanne:
Thanks so much for the update. Grouchy is understandable. I’m just so glad to hear he’s sitting up today! And out of ICU. What great news!
Grover: keep up the good work! I’m sure you’ll be reading this soon.Kris
Derin:
How I wish I had your veins!! I went with a port after 1 treatment with Gemzar. 3 veins in 90 minutes.
Glad to hear your numbers are still good and you are feeling well. Good luck with the fishing expedition. I hope you get that trout.Kris
Susie:
I’m not sure what all that means either, but if your onc says that’s good news, then YAY!!! (I need some of my scans translated into English too)
I hope you have a wonderful vacation with family.
Good luck on Monday! I’ll check in Tues. to see how you’re doing.
KrisOh, thank God! I will admit, the news actually made me cry with happiness!! May the good Lord continue to smile down upon Grover.
Kris
It’s so silly that if you are female and under 54 you have to have a pregnancy test before any major procedures. I’ve only had about 12 or so this past year!!
And God forbid it ever comes back positive! At 48 I think I missed that boat a decade ago.
Lainy: I don’t think I’ll ever hear liver and onions the same again! Never had it, but I doubt I ever will after this is thru. Thanks for the smile!Kris
