lazarus

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  • August 24, 2017 at 7:25 pm in reply to: Need advice #95516
    lazarus
    Spectator

    Thank you Mary

    August 23, 2017 at 7:17 pm in reply to: Need advice #95514
    lazarus
    Spectator

    Melinda,
    Thanks for that advice. We decided that Jack will not go for the pump. Hearing that it can kill the liver is too scary, and Jack has no metastasis and per his oncologist his liver is still working fine. So he started the gem/ Cis today, and is seeiking a few more surgical opinions. It scares us that the chemo only has a 27 % efficacy ( is that right?) I know that there are a lot of other options as far as clinical trials, etc. He has sent lab work to foundation one.

    Melinda, you are one rock star. I read your story and it’s incredible all that you went through. If I could pick your brain further in the future it would be so appreciated. I also thank everyone on this board for their help and input. Continued prayers for all cancer patients.

    Kasia

    August 22, 2017 at 2:50 pm in reply to: Need advice #95510
    lazarus
    Spectator

    Thanks Joe

    August 22, 2017 at 12:26 pm in reply to: Need advice #95512
    lazarus
    Spectator

    Catherine, I did read your mom’s story as I’ve been following this site a little while. That is wonderful news and it gave me hope when I read it. You are such a positive person your mom is lucky to have you as her daughter and advocate.

    Barb, thanks for your words of hope, Dr Fung is at Univerisy of Chicago now. We will try a few more Surgical opinions, and Jack will start chemo this Wednesday. It’s wonderful to have this community to run things by.

    Prayers for all cc patients and warriors.

    Kasia

    August 21, 2017 at 10:03 pm in reply to: Need advice #95507
    lazarus
    Spectator

    Joe,
    What was your Moms Surgeons name? And when was her surgery? Thanks

    August 21, 2017 at 9:36 pm in reply to: Need advice #95506
    lazarus
    Spectator

    Thanks everyone, Jack is gathering the information and it’s all being processed. The second Suergon was from U of C a renowned Suergon by the name of Dr fung. He said the tumor is just anatomically not possible to remove at this time because there are some complications with thrombosis,etc. he is willing to operate once they get reduction in size. We are hoping for that.

    We will keeep everyone posted ,

    Thank you

    Kasia

    August 21, 2017 at 2:49 pm in reply to: Need advice #95502
    lazarus
    Spectator

    Thank you Mary!

    August 10, 2017 at 1:06 pm in reply to: Hello, new to this. #95414
    lazarus
    Spectator

    Thanks Marion

    August 10, 2017 at 1:34 am in reply to: Hello, new to this. #95411
    lazarus
    Spectator

    Thank you Kim and Mary that is very helpful.

    August 9, 2017 at 8:56 pm in reply to: Hello, new to this. #95409
    lazarus
    Spectator

    Hi, my name is Kasia, and I am Jack’s twin sister. I have been reading these discussion boards since my brother was diagnosed. It’s ironic because as a long time RN, I don’t have much experience with cc, but I was not in oncology.
    Does anyone know if insurance covers genetic tumor testing? Just curious since Jack was told it can be quite pricey. I know he will get it done regardless.
    I have been reading everyone’s stories and it does bring hope to my family since Jacks ICC shows no mets. He is getting 2 nd opinions right now, since the first said he was not resectable at this time.. I feel like time is standing still as we wait for what’s to be done.

    Thanks
    Kasia

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