lisaann
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Lainy wrote:LisaAnn, where is your father being treated? He may have an infection in his stents.
Dad is at Adams County Regional in Ohio right now, this is just a small hospital and they are basically keeping him pain free and hydrated until he can have surgery at the University of Cincinnati on Wednesday. I am just hoping everyone involved in his care do know how to deal with this kind of thing. I don’t know what UC’s rating is as far as a CC cancer hospital, but he has basically waited since April to get this far with surgery. Some of that has been due to the long time of trying to diagnose him and then he failed his cardiac stress test. Is 3 months a long time to wait when they suspect CC?
Update on Dad, he was admitted through the ER and he is moderately dehydrated. But he now has a fever of 101 which is worrying I think. I know the doctors are thinking this is CC and this makes me wonder if he is more advanced than what they thought? He can barely drink water.
I have wondered about the environmental aspect myself. Dad lives in a Southern Ohio town called Manchester. There are two very close powerplants to us and they have been cited many times for EPA violations. There are many people around my parents with all kinds of illness, from MS, to ALS, to Multiple Myeloma and now Dad with possible CC. There is also a young girl with something called Castleman’s Disease and very rare. I would like to know if there is a connection to the environment and this is the first I’ve heard about the jet fuel dumping.
Thank you all for the kind messages of support. Just wanted to let you know that I was able to get an email response from a Mayo doctor, Dr. Gores. He did not say that Mayo could look at Dad’s scans, but did read his history and he concurred that Dad does need this surgery one way or the other. I wish he had agreed to look at the actual scans though. But he was very nice in answering my email.
Thank you so much Margaret! You can’t know how much it means that someone is out there to talk to. It has been a hellish few months and we still don’t know anything.
I don’t understand why the doctors still think it is cancer. On Dad’s last CT scan the diagnosis says, “malignant neoplasm of the bile duct.” But when they talk to us, they say, we are not sure. It makes me worry he should be treated somewhere else.
We live about 6 hours from Cleveland Clinic, but Dad does not want to travel. I have wondered if a doctor there would look at this reports without Dad actually being there? Not sure if that is possible.
Thank you again.
