luluu

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  • in reply to: After Mayo, a third opinion #22981
    luluu
    Spectator

    Kristin, I am new to this forum and so happy to read about how you’re doing. I actually started to cry because it gave me hope.

    My husband has CC and I actually asked his oncologist to call the mayo clinic about my husband to see what they could offer him. So I guess I shouldn’t be surprised that he said they didn’t have anything to help.

    We will be meeting with a new oncologist on the 3rd because the one we have now is a joke. Based on his comments to me, I know he’s just going through the motions and that’s not acceptable.

    For those of us that don’t know…please tell us your story. When were you diagnosised and what kind of treatment have you had and anything alternative you are doing. You are an inspiration–I need to know how to get my husband to 5 years.

    Thanks

    in reply to: Help, need some options. #23755
    luluu
    Spectator

    Gene or anyone, please explain how you you become a candidate for a liver transplant or resection. Also, tell me about radiation, what tumor did they target. Is the tumor still in your bile duct?
    I think my husband was not treated aggresively, 4cc tumor in bile duct, aboarted resection because mets to liver, small enough they didn’t show up on PET or CT. So can someone tell me why they wouldn’t do anything surgically. Did we just pick the wrong surgeon?

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