maggie
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I think that you raised an interesting point. Dioxin receptors (dioxin/aryl hydrocarbon receptor AhR) are expressed throughout the liver. I wish your husband all the best.
Hello everyone,
Thank you for your kind words, they were greatly appreciated! I still check this site regularly to see how everyone is doing. My husband and I have started up our research program into finding an effective treatment for this type of cancer. We are also looking into developing a novel screening method to detect cancer at a very early stage. The NIH is always looking for talented scientists, students, special volunteers, etc… so if anyone is interested in a career in science they should definitely check out the NIH website……
Stay strong and keep fighting this horrible cancer! It is by sharing information on which approaches work and which don’t that we will be able to get a better understanding of this devastating disease process.
All the best,
Maggie
Dear Marion,
I am so sorry that you and your kids lost such a wonderful husband and father. I don’t know what to say. Just know that you and your family are in my thoughts and I wish you strength and courage. Thanks for all your posts and input on this site.
Maggie
Hello everybody,
Thanks for all your help so far. I sent out my mum’s scans to numerous cholangiocarcinoma experts and many have been very helpful.
Unfortunately, things here have gone from bad to worse. My mum’s previous scan (Dec 12) showed that there were 2 tumors in the hilum of the liver. However, her scan yesterday showed that there are now multiple new tumors throughout the liver. As the disease seems to be progressing very rapidly now (after a good initial response with Gemzar), her doctors think that she may only have a few weeks left. Obviously this was very distressing news for us.
As a last ditch attempt we are looking into second-line chemotherapy (5FU and oxaliplatin has been suggested to us) or photodynamic therapy (PDT). At the moment, her quality of life is reasonable as her doctors are working on reducing the lower back and abdomen pain (mainly at night) and the nausea.
I’m not sure whether the potential benefits of second-line chemo would outweigh the risks. The last thing we would want to do is to reduce her quality of life with a treatment that only has a tiny chance of having any benefit.
Has anyone here had good results with second-line chemotherapy by any chance?
Thank you all for your help. This website is a great comfort and support line for me and I wish you all the very best.
Maggie
