mbachini
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Kris….that is great news! 19 months on one drug is amazing and STABLE is even better! Keep up the good work! I don’t know how I used to work full time….there is not enough time in the day for everything!!
MelindaJean Marie…….I am sorry. I have been thinking of you and Jeff so much. My heart hurts for you. I know the love you have for Jeff is so strong….praying for your comfort and peace….all my love to you.
MelindaJulie,
When I go back to NIH for checkups, I have both a CT and MRI. I remember asking why both but for the life of me can’t remember the answer. I am sure one views a little different than the other so both can be beneficial for different areas??? Anyway when I go back in February, I will ask again.
MelindaChristopher,
Welcome to the cc boards and thank you for sharing your amazing story. You have had some great blessings along the way! I always wanted twins!! Please keep us updated on your progress and I will keep you and your family in my prayers. Hugs to you….MelindaHi Carrie,
Welcome to this site….I am glad your father was able to enjoy the Thanksgiving day parade with his grandson…how wonderful is that!!When I was first diagnosed….I also had right shoulder pain and back pain. My tumor was quite large as well and I was told that the pain was “referred pain” from the liver. I hope his pain is alleviated soon and all is well. Please keep us posted. Hugs and prayers to you and your father.
MelindaDear Bea,
What you describe about your ears being blocked is exactly what I get when I am in crowds or anywhere there is a lot of background noise. In those situations it is very hard to hear someone who is talking to me. That is really the only time I can notice a deficit in my hearing. Please let me know what you find out…thanks….Melinda
Dear Bgeo,
Welcome to this site. I am glad you are tolerating chemo so well with good results! I too, had the gem/cis combo for about 6 months. I developed the ringing in my ears as well, also slight hearing damage which I still have both to this day and it has been about 4 years since treatment. I am glad you onc was on top of it to lower the dose right away.
It is definitely comforting to have options…glad you have had some genetic testing done. I celebrate my 5 year mark today thanks to an immunotherapy trial at NIH! All my best to you and please keep us posted on your progress.
Hugs and prayers,
Melinda B.Dear Heather,
You have not offended me or anyone! I and the others totally understand. I am 46 also, I have 6 children. ….I know the emotions of fear, anger and all the other emotions you could fathom! Please feel safe to vent here…we all just care and want to help in anyway we can.
MelindaDear Jason,
My heart is saddened for the loss of Andrea. I am so sorry for your pain and I pray for strength, love, comfort and peace to fill your heart and mind…..and for your children as well. Thank you for all you do for the fight of cholangiocarcinoma and thank you for sharing Andrea’s story with us.
I promise to keep fighting too, I promise to do what I can to help in this fight for all those who have been taken way to early from this disease.
All my love,
Melinda BachiniHi Sarah,
Welcome to this site! Gavin is so great with all the information he posts! I am excited to hear how your gene testing comes back and am hoping they find a more targeted therapy for you. I like your determination and am so glad you are here. Please keep us informed of your progress and know we are here to encourage and support you in any way we can! Prayers and hugs to you!
MelindaDear Lisa,
I am so happy for your results! You are an amazing and incredible woman who gives so much to others. Thanks for all your support here on the boards and thanks for encouraging me this week when I needed it the most!!
Love and hugs,
MelindaJulie,
Congratulations on clear scans!! I am so happy for you and your family. May this news bring some comfort for you, especially through the holidays so you can relax and enjoy the blessings of your family. I wish I was there to hear your spontaneous singing of Silent Night…one of my favorites! Love, hugs and prayers to you!
Melinda B.Dear Christian,
Hoping your mother was able to get some stabilization at the hospital and the cause of the fever was found and treated. Love your sense of humor! Keep it up…it helps! Hugs and prayers…Melinda
